Dear Friends: 
Thank you for following my blogs through the years and allowing me to share how Huntington’s Disease (HD) impacted the Marin family. A personal goal was to disseminate important Huntington’s Disease (HD) information to you and your family that could keep HOPE high in your heart.
This will be my last blog but before I go, I wish to share my extraordinary HD journey with you. 
In 2010, my Huntington’s disease journey began with the writing of my book, (published in 2017) as I suffered from complicated grief and writing my story validated what my family had endured.
In 2015, I built my HD Advocate/Author website and I began blogging.
I continued addressing my grief by becoming involved with the nonprofit, Huntington’s Disease Society of America (HDSA). By creating the HDSA SF Bay Area Chapter it allowed me, and the Chapter Leadership Team, to reach San Francisco Bay Area HD families and this work has given me peace.
I never thought the hole (grief) I harbored in my heart for my three sisters-in-law would ever close but through this work, that hole is now the size of a pinhole.
From my family to yours, I wish you well.
We Can Never Lose HOPE………..
2 Comments
thank you Theresa, yours was the first of many reads as our family has begun this journey….. on the east coast—
thank you for sharing….. thank you for being open with your story……
(and ps, i do find it odd that we use a care company out of MA …. Cahoon Care… here in our home… !!)
I am glad your grief is a pinhole…. writing therapeutic, Peace to your family, ellen
Happy Thanksgiving Ellen. Thank you so much for your kind words and I’m so glad there are several books out there that can educate people about HD. May you and your family have a wonderful holiday season. Fondly, Therese