As I close the chapter on promoting my book, I want to encourage Huntington’s families to share their Huntington’s disease story in a book/online/local newspapers. This is a way to heighten the awareness of the disease.
Watching Their Dance: Three Sisters, a Genetic Disease and Marrying Into A Family At Risk for Huntington’s, is John and my love story while living in the shadow of Huntington’s disease (HD). I share how HD empowered us to live our life fully and not take anything for granted. Our love gave us strength to live with John’s unknown gene status for the disease and we both incorporated mindfulness in our daily life.
I had many reasons for writing the book and the 1st was a selfish reason. After my three sisters-in-law, Lora, Marcia, Cindy died from HD complications, I was caught in a web of complicated grief and did not know how to navigate through it. Putting my words on paper validated what I had lived through and I was able to move forward. The 2nd motivation was to heighten HD awareness of this cruel disease that affects families for generations, the 3rd purpose was to honor my sisters-in-law and create their legacy. The 4th reason was to donate the profits from book sales to the nonprofit, Huntington’s Disease Society of America (HDSA). (approximately $16,000.00)
We Can Never Lose Hope…
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