Testing is a very personal choice and approximately 7-10% of folks at risk for HD, decide to be tested. Genetic testing and your rights
Other information: HDSA Genetic Testing Protocol for HD.pdf
Here’s John and my story regarding testing:
In 1993, when the test became available for Huntington’s disease, I was thrilled to say the least. I boldly asked John if he would be tested; I thought for sure he would want to know his gene status. It was a selfish act on my part because I’m a control freak and wanted control of our lives, and knowing his status, I felt would allow us to better plan our future. When he said he wanted to continue living with the HOPE that he didn’t have the mutated gene, I understood.
John tested in 2016 when Vanessa and Keith became engaged to be married. John wanted to give his children a definitive answer so they could plan their lives.
On January 8, 2016, John tested NEGATIVE for which we are so grateful.
Testing for Huntington’s disease: Making An Informed Choice…………. See Link Below