Jennifer Simpson, Senior Manager of Advocacy and Youth Programs at
Huntington’s Disease Society of America is leading the HD Advocacy Caucus. HDSA San Francisco Bay Area Affiliate has one board member on the Caucus who reports to the SF Affiliate Board at the monthly meeting.
Mission of the HD Advocacy Caucus: 
- To engage and create more advocates in order to change public policy to improve the lives of individuals and families living with Huntington’s disease (HD) at the Federal and State levels
What do we do:
- Raise awareness about HD-related legislation
- Advocate for HD-related legislation by engaging with US legislators
- Recruit, activate and train advocates
Goals:
- Pass legislation that facilitates access to care and/or improves the lives of people living with HD
- Increase the number of legislators educated about HD and engaged with the HD Community
- Advocate for HD-related legislation by engaging with U.S. legislators
- Pass the HD Parity Act
What are we working on:
- Passing the Huntington’s Disease Parity Act, advocating for increased access to telehealth services through the Covid-19 Pandemic, Strengthening GINA
- Training and Engaging Advocates like you so you can engage your US legislators in the fight to improve the lives of individuals and families impacted by HD
We Can Never Lose HOPE……
The nonfiction book I penned, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on my author website 
He felt he owed it to his children. We made an appointment at the 
On January 8th, 2016, John and I held hands as we waited in the patient room. When Dr. Wheelock entered and sat down, my heart was beating so fast I felt dizzy. I could tell John was nervous, squeezing my hand and taking deep breathes. Mara, was also in the room as Dr. Wheelock asked if we wanted to hear the result. I looked at John, and he nodded. 
Whenever I hear it on the radio, I think of my husband, John Anthony Marin, my touchstone, my ever positive influencer in my life, the most resilient person I know, who kept me from shrinking into the depth of despair as each sister-in-law left this world because of 
John was the wind that supported me as we traveled through turbulent times in our life; he is still my biggest supporter and I would stumble and fall without him. We now travel together into a smooth, calm breeze of peace and tranquility.