Welcome and thank you for visiting my website.
My name is Therese Crutcher-Marin and I’m the President of the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Chapter, a Huntington’s Disease Advocate, an Author and Blogger.
In 1978, after learning that John Marin and his three sisters were at risk for Huntington’s disease, I began a soul searching journey to decide if I was strong enough to marry the man I loved who had an unknown gene status for the cruelest disease on the planet; Huntington’s disease. It was a challenging decision which was certain to affect the trajectory of my life.
Fast forward to the present. Lora, Marcia and Cindy, my three sisters-in-law, who were lost to Huntington’s disease, are the reasons I volunteer for HDSA. I’m passionate about fulfilling HDSA’s Mission Statement: HDSA is dedicated to improving the lives of everyone affected by Huntington’s disease and their families.
A tag line you will see when I post on social media platforms and on my blog is:
We Can Never Lose HOPE……
Sign up for my weekly blog and I will send you the first chapter of, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. You can find the memoir on many book websites: Amazon, B&N, Huntington’s Disease Society of America website, Thriftbooks.
100% of profit is donated to HDSA. So far, John and I have donated approximate $16,000.00 to HDSA.