I’m Therese Crutcher-Marin, a Huntington’s disease (HD) advocate, Chair for the the HDSA San Francisco Bay Area Chapter, a blogger and an author.
The fundraiser for Huntington’s Disease is coming up on Saturday, June 17th at Campbell Park in Campbell CA. Register
Huntington’s disease is a rare, fatal, genetic brain disorder that has symptoms of ALS, Parkinson’s and Alzheimer’s at the same time and it strikes young. About 16% of all cases are children with Juvenile HD. When a parent has the disease, each child has a 50/50 chance of inheriting the mutated gene and developing the disease. There is NO CURE. 41,000 Americans are symptomatic and approximately 200,000 live at risk. A genetic test is available to determine whether you have the mutated huntingtin gene that causes the disease, but very few people get tested.