I’m very excited for 2021 because there is light at the end of the tunnel with the pandemic. Hopefully, by late Spring 2021, we will be able to hug our loved ones and see our friends.
My name is Therese Crutcher-Marin and I’m a Huntington’s disease (HD) advocate, a blogger, author and currently serve as Chair for the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate. Thank you for visiting my website!
The nonprofit, HDSA, is 90% volunteer based. Everyone on the Affiliate Team is a volunteer. HD is a rare, fatal, genetic brain disorder with NO CURE. Approximately, 41,000 Americans have the disease and 200,000-250,000 live at risk for inheriting the mutated huntingtin gene.
I published a nonfiction book, Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington’s in 2017. It’s an inspirational love story while living with the uncertainty of my husband, John, inheriting the fatal brain disorder, Huntington’s disease.
100% of the book purchase price is donated to (HDSA). To date, John and I have donated over $16,000.00, the book profit, to help in the fight against Huntington’s disease.
I’m currently writing a historical fiction novel based on my 102 Grandmother Christina Mary (Mages) Crutcher who grew up in the 1920’s with 12 brothers and sisters in Ottawa Kansas.
You can find information about Huntington’s disease (HD) under the “HD” tab at the top of the website.
We Can Never Lose HOPE……….