My name is  Therese Crutcher-Marin and I’m a Huntington’s Disease Advocate and Author.  Thank you for visiting my Author and Huntington’s Disease Advocate website.

Phyllis & Cindy

Lora, Cindy and Marcia Marin

My husband’s family, the Marin’s, has dealt with Huntington’s Disease (HD) for at least five (5) generations.  John’s three (3) sisters lost their battle with the disease along with his mother, Phyllis Cahoon Marin and many aunts, uncles and cousins.  His sisters, Lora, Marcia and Cindy are missed and because of them I am involved with the nonprofit, Huntington’s Disease Society of America (HDSA) to help local HD families have the highest quality to their lives.

I’m currently the President of the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Chapter.   In 2019, seven (7) Huntington’s Disease Advocates and myself applied to HDSA to start a Chapter.  Both HDSA Centers of Excellence at Stanford Health and UCSF Medical Center were very supportive in the effort and are currently on the Chapter’s Board as advisors.

The first HDSA SF Bay Area Chapter meeting was on January 20, 2020. We kicked off the newly formed Chapter and have grown over the past five (5) years and currently have a local Chapter Social Worker.

Satve Ilango can be reached via email or by telephone: [email protected], 650 587-0988. 

We Can Never Lose HOPE……

UPCOMING 2025 HDSA SAN FRANCISCO BAY AREA CHAPTER EVENTS

Baseball Link:                                                     Register:  San Francisco Team Hope Timed 5K Run & 5K Walk

Promo Code: HDSA