Therese Crutcher-Marin-Author & Huntington’s Disease Advocate

My name is  Therese Crutcher-Marin and I’m the President of the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Chapter, a Huntington’s Disease Advocate, an Author and Blogger.

Thank you for visiting my Author and Huntington’s Disease Advocate website.

The HDSA SF Bay Area Chapter is hosting the 18th Annual San Francisco Team Hope 5K Walk & Fun Run on October 5th, 2024 at Presidio Sports Basement. Come dressed as a “Hero or Villain”.  The fundraiser will begin at 9 am in Sports Basement Community Room and the walk on Crissy Field starts at 10 am.

Come out and join us as we hope to raise $40,000.00 for research, to support the HD clinics at Stanford Medicine and UCSF Medical Center, the SF Chapter Social Worker and many Free resources/programs.  Register here

My husband’s family has dealt with Huntington’s Disease (HD) for at least five (5) generations.  John’s three (3) sisters lost their battle with the disease.  Lora, Marcia and Cindy are missed and I am involved with the nonprofit, Huntington’s Disease Society of America (HDSA) to help local HD families have the highest quality to their lives.

We Can Never Lose HOPE……

Sign up for my blog and I will send you the first chapter of, Watching Their Dance:  Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. Watching the Dance Huntingtons Disease You can find the memoir on many book websites:  Amazon, B&N, Huntington’s Disease Society of America website, Thriftbooks.   

100% of profit is donated to HDSA. So far, John and I have donated approximate $16,000.00 to HDSA.