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        May is Huntington’s Disease Awareness Month!

I’m Therese Crutcher-Marin and on this website I share information on Huntington’s Disease (HD) and blog one (1) time a week on clinical research being conducted, services available to HD families, how HD affected my family and much more.

Huntington’s disease is a rare, fatal, genetic brain disorder that has symptoms of ALS, Parkinson’s and Alzheimer’s at the same time and it strikes young. About 16% of all cases are children with Juvenile HD.  When a parent has the disease, each child has a 50/50 chance of inheriting the mutated gene and developing the disease.  There is NO CURE.

41,000 Americans are symptomatic and approximately 200,000 live at risk.  A genetic test is available to find out whether you have the mutated huntingtin gene, but very few people get tested.  

At this time, HOPE runs high in the HD community because there are many promising clinical trials being conducted around the world on therapies that can improve the quality of life for families struggling with HD.