Hello and thanks for visiting my Huntington’s Disease Advocate and Author Website.             

I’m Therese Crutcher-Marin, a Huntington’s disease (HD) advocate, Chair for the the HDSA San Francisco Bay Area Chapter, a blogger and an author. 

Five years ago my family started the San Jose Team Hope Timed 10K Run & 5K Walk.  My kids added the 10K timed run because runners are a great addition to the event, and they bring in more money.  Having the Team Hope Run/Walk in the South Bay of the San Francisco, greater San Jose Area, allowed HD families to not travel as far with their loved ones because it’s a long drive to attend the San Francisco Team Hope Walk.

The fundraiser for Huntington’s Disease is coming up on Saturday, June 17th at Campbell Park in Campbell CA.  Register 

Huntington’s disease is a rare, fatal, genetic brain disorder that has symptoms of ALS, Parkinson’s and Alzheimer’s at the same time and it strikes young. About 16% of all cases are children with Juvenile HD.  When a parent has the disease, each child has a 50/50 chance of inheriting the mutated gene and developing the disease.  There is NO CURE. 41,000 Americans are symptomatic and approximately 200,000 live at risk.  A genetic test is available to determine whether you have the mutated huntingtin gene that causes the disease, but very few people get tested.