Hello, My name is Therese Crutcher-Marin and Welcome to my Author website.
I’m a Huntington’s disease (HD) advocate and currently serve as Chair for the new HDSA San Francisco Bay Area Affiliate. You can find information about Huntington’s disease (HD) under the “HD” tab at the top of the website.
The nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s is my inaugural book. It’s an inspirational love story while living with the uncertainty of my husband, John, inheriting the fatal brain disorder, Huntington’s disease, which has no cure.
My story is about the power of HOPE than the wages of Huntington’s. It may sound strange to most folks, but my marriage was actually fortified by its precariousness—I learned to love more deeply in the shadow of John’s mortality. Knowing that my world could change overnight taught me to live MINDFULLY each and every day and never take John, our life, our love for granted. Living with this huge uncertainty also taught me to FORGIVE, LOVE UNCONDITIONALLY and NOT SWEAT THE SMALL STUFF.
A true story that is as uplifting as it is heartbreaking.
Through this experience I learned that, We Can Never Lose HOPE
100% of the profits from the book are being donated to the nonprofit, Huntington’s Disease Society of America (HDSA). To date, John and I have donated over $15,000.00 to help in the fight against Huntington’s disease.
Video on Virtual Resources on HDSA.org website: