Author & Huntington’s Disease Advocate

           Happy New Year and Thank You For Visiting My Website! 

I’m Therese Crutcher-Marin, a Huntington’s disease (HD) advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  100% of the proceeds from book sales is donated to the nonprofit, Huntington’s Disease Society of America (HDSA).

Please consider making a donation to the nonprofit  HDSA and you will be supporting HD research, 55 Centers of Excellence, free resources/services HD families can access to have the highest quality to their life on their HD journey.   To locate helpful, free Programs & Services visit HDSA to find support. 

Huntington’s disease is a rare, fatal, genetic brain disorder that has symptoms of ALS, Parkinson’s and Alzheimer’s at the same time and it strikes young. About 16% of all cases are children with Juvenile HD.  When a parent has the disease, each child has a 50/50 chance of inheriting the mutated gene and developing the disease.  There is NO CURE. 41,000 Americans are symptomatic and approximately 200,000 live at risk.  A genetic test is available to find out whether you have the mutated huntingtin gene that causes the disease, but very few people get tested.  

At this time, HOPE runs high in the HD community because there are 50 companies working on new therapies that can improve the quality of life for families struggling with HD.  Article on the companies.

 

We Can Never Lose HOPE……

From my family to yours, have a safe, New Year!