Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is John and my love story, over 38 years, and how living at risk for Huntington’s disease (HD) impacted our lives and how I coped with this huge uncertainty in my life. By incorporating mindfulness, hope and forgiveness, I was able to live my life fully everyday with John.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
The precariousness of the situation, living with John’s unknown gene status, actually fortified my marriage. The threat of my world changing overnight taught me to love deeply in the shadow of John’s mortality. In my case, love conquers all.