Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is John and my love story, over 38 years, and how living at risk for Huntington’s disease (HD) impacted our lives and how I coped with this huge uncertainty for years. By incorporating mindfulness, hope and forgiveness, I was able to live my life fully everyday with John.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
The precariousness of the situation, living with John’s unknown gene status, actually fortified my marriage. The threat of my world changing overnight taught me to love deeply in the shadow of John’s mortality. In my case, love conquers all.
This is what Jazz Jaeschke from Story Circle Book Reviews (Goodreads) reviewing books by, for, and about women said about Watching Their Dance:
“My recommendation? Read this book as if you were looking into a mirror. You will find metaphors for living in the moment, for dropping the need-to-know, and for valuing differences in others. You will find reflections of your own anxieties and likely come away encouraged to “keep on keeping on” with life. While you will learn a great deal about Huntington’s Disease along the way, this book has much to offer beyond the boundaries of any disease.”