Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s
Lora, Cindy, Marcia Marin
My story is about the power of HOPE than the wages of Huntington’s. It may sound strange to most folks, but my marriage was actually fortified by its precariousness—I learned to love more deeply in the shadow of John’s mortality. Knowing that my world could change overnight taught me to live MINDFULLY each and every day and never take John, our life, our love for granted. Living with this huge uncertainty also taught me to FORGIVE, LOVE UNCONDITIONALLY and NOT SWEAT THE SMALL STUFF.
“A true story that is as uplifting as it is heartbreaking”. KirkusReviews
Through this experience I learned that, We Can Never Lose HOPE
For U.S. residents, please purchase a copy at Amazon, B&N, IndieBound and other book websites. Available in Kindle, Nook, Kobo format. Also, see the book on Huntington’s Disease Society of America website.
Since 2017, I’ve donated approximately $16,000.00 from book sales to the nonprofit, Huntington’s Disease Society of America.
If you live outside the U.S., please purchase the book on an Amazon website in your country.
Making changes in your life is not always easy and sometimes it’s hard to take those first steps. We have to step outside our comfort zone and that takes energy and bravery. But if that is what it takes to survive, or to achieve a goal, wouldn’t you do it? Through my experience of living in a family AT RISK for the cruelest disease on the planet, I chose to change in order to survive. And guess what? I did survive and you can too by being open to altering your way of thinking or the way you react or do things.
12 Comments
I love your website…enjoy reading it…and so look forward to reading your book! You WILL let us know how to get a copy. And good luck to the HDSA team!
Yes, I will let you know when the book is available. My editor just informed me on Wed.that she’s not sending anything back to me for rewriting; I’m thrilled. So I’m concentrating on social media and marketing and will begin to feature Fran and Vanessa when HDSA has their fundraising website set up. Thanks for the positive thoughts.
I also anxiously await the finished product. Reading it will truly be a learning experience as I am unfamiliar with Huntington’s Disease. Congratulations on the “editing” update. Gosh, that’s a wonderful feeling! I am proud of and for you!
Thanks Andrea and you are to be commended also with your perseverance in creating 3 books on a huge topic that affects our society.
Cannot wait to get my hands on this book. My wife has Huntington disease and it is a tough journey ahead! Congratulations in writing a book about HD, I will do some promotional work with my friends for you once released. Paul
Hi Paul, Thank you for contacting me and for your support. I’m sorry to hear your wife has HD.
At this time, my book cover is being designed and the file formatted so I hope to have my book available to purchase on this website around June 1st, 2017 after promoting the heck out of it in May, which is HD Awareness Month. I can make the largest profit, which will be donated to HDSA, by selling it on my website since there is no middleman, like Amazon. It will be available on Amazon since I am going global with the book. Happy New Year to you and your family. Therese
I am looking forward to reading your book – my husband has kept a diary of his brothers fight with HD which I have tried to talk him into getting published – it is very moving – luckily my husband hasn’t got the gene but still has the survivors guilt which is also terrible.
John, my husband, also has survivor guilt but doesn’t like to talk about it because he was the lucky sibling. Two of his sisters were diagnosed but Lora, the oldest, died before the test was available. She was severely depressed and she drank herself to death at age 41. It’s a blessing my sisters-in-law didn’t have any children. John will never read my book because he already lived it and though it is our love story, it is too painful to read about his sisters. But he is my biggest supporter because he knows my reasons for writing the book was to honor Lora, Marcia, Cindy, heighten HD awareness and generate a revenue stream to Huntington’s organizations around the world. He’s helping me in the marketing end of the book. Best wishes, Therese
[…] Purchase Book […]
[…] Purchase Book […]
I had a sister-in-law who died from Huntington Chorea years ago. She lived with this disease for many years. After she passed away in her fifties, her daughter Juliann Coalter started expirincing symptoms of HC. Juliann’s brother has no symptoms of HD.
Looking forward to reading your book Therese Cruther.
I read a book a good while ago about a newsman’s wife who developed Alzheimer’s Disease in her late 30th that was so very good. Much success with your book. Looks very good.
Hi Janet, Thank you for sharing your story with me. So sorry to hear the daughter inherited this terrible disease, and I glad to hear Juliann’s brother may be free from HD.
Thank you for supporting my fundraising/HD Awareness project. My husband, John, and myself want to help in the fight against this horrific disease that devastates families for generations. John tested negative last year, so our children will not live at risk like we did for 38 years. My three sisters-in-law had no children so HD will not hurt another person in our family. Best, Therese