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Love

Remembering LoraLee (Marin) Harbin

Today, July 15th, is Loralee (Marin) Harbin’s, my dear sister-in-law, birthday. As a Rememberer, I write this blog to honor her and for the world to know what a loss she was to our family and friends.

Lora was taken from the Marin family at a young age of 41.  Lora had Huntington’s disease as did her mother, Phyllis (Cahoon) Marin.  I am blessed to have had her in my life for 12 years, and unfortunately, my children were too young to have known this wonderful aunt of theirs.

A light radiated from Lora and her smile made them everyone she came in contact with comfortable.  She was the kindest, most giving, loving person I have ever known.

 

  Happy Birthday, Lora……………John, Keith, Vanessa and I miss you and you will live forever in our hearts.

                                           We Can Never Lose HOPE………

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website:  https://theresecrutchermarin.com

Please make a donation to the nonprofit, Huntington’s Disease Society of America, to help fight HD.

 

 

 

 

 

Love

Loving Deeply In The Shadow of Huntington’s Disease

Forty years ago, I chose to be with John despite his unknown gene status for Huntington’s disease (HD). This may sound a little crazy, but living at risk for the cruelest disease on the planet with John, for 38 years, and the precariousness of the situation, fortified my marriage.  I say this because knowing my world could change over night, and steal what I loved most, made me appreciate John everyday, never taking him or our relationship for granted. Living_at_risk_for_HD_  

And, I learned to love more deeply in the shadow of John’s mortality.

John and I rarely fought, we had some disagreements, but never got mad at each other.  Life is just too short not to forgive because we are all human and we all make mistakes.

The things I learned through this journey with Huntington’s disease looming over us, was to appreciate what I had in my life at that moment; I lived mindfully.  Also, John and I also didn’t put off the things we wanted to do and we able to create so many wonderful memories together with our children. 

Author Therese Crutcher-Marin

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on my author website/HD Advocate & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from my book is being donated to the nonprofit, HDSA.

 Subscribe to Therese’s Blog via Email

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Love

Who Is Your Touchstone?

One of my favorite songs is The Wind Beneath My Wings by Bette Midler; from the movie Beaches. The song depicts the relationship between two woman, Bette Midler and Barbara Hersey, and their undying friendship, love and devotion despite their differences. 

Whenever I hear it on the radio, I think of my husband, John Anthony Marin, my touchstone, my ever positive influencer in my life, the most resilient person I know, who kept me from shrinking into the depth of despair as each sister-in-law left this world because of Huntington’s disease (HD).

John was the wind that supported me as we traveled through turbulent times in our life; he is still my biggest supporter and I would stumble and fall without him.  We now travel together into a smooth, calm breeze of peace and tranquility. 

So I ask you.  Who is the wind beneath your wings?  

My memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on my author/HD advocate website  https://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from my book sold in the U.S. will be donated to the nonprofit, Huntington’s Disease Society of America (HDSA).  Make a donation to help fight HD @ HDSA.

 Subscribe to Therese’s Blog via Email

 Enter your email address to subscribe to my blog and receive notifications of new posts by email and receive the first chapter of her book, Watching Their Dance, via email.

Love, Thankful

If My Heart Had Wings

May is Huntington’s Disease Awareness Month, a time to remember those we lost to HD and to honor them.  So, today I think of Lora, Marcia and Cindy Marin, my three (3) sisters-in-law, embrace their memory admiring the courage they portrayed during this HD journey. 

If my heart had wings I would fly to heaven and enfold these three (3) women and thank them for the enrichment they bestowed upon my life. The people with whom you surround yourself have an enormous impact on your life. In many ways, they shape it.

The book I penned, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is to honor these three (3) women who taught me about forgiveness, kindness and unconditional love. John continues to remind me, by the way he lives his life, of these valuable virtues.

Even though my children, Keith and Vanessa, only knew their aunts for a short time, Huntington’s disease stole them away from us, they positively impacted their lives and for that I’m also thankful.

 

 

 

 

We Can Never Lose HOPE…..

Please consider making a donation to the nonprofit, HDSA.  Thank you.

I’m a HD advocate, Chair for HDSA San Francisco Bay Area Affiliate, an author and a blogger.

Watching the Dance Huntingtons Disease

Visit my website at:  https://theresecrutchermarin.com

100% of the proceeds from my book, is donated to HDSA.

Hospice, Love

My Journey’s End

Author Therese Crutcher-Marin

“My Journey’s End is a place to which someone or something is going or being sent.”

Throughout my life I’ve had several My Journey’s End;  the first was during college when the Marin siblings discovered they were at risk for Huntington’s Disease and I walked away from John because I was scared. After an epiphany, I was sent to John, the love of my life and my Journey’s End for love ended.

Another My Journey’s End occurred during my career in healthcare.  In 1991, our children were young and I was working part time managing the Lifeline program at our local hospital in Auburn.  I was looking for another part time position to become full time; my anxiety would lessen when I was working full time.  One day I ran into the Hospice Director and she asked me to consider the Hospice Support Services Manager position, a part time position. We had just moved Marcia, my sister-in-law with HD, to our town and I was managing her care.  I believe I was sent to Hospice, destined, to work and learn from the dying.  I see this as My Journey’s End as far as my career and was blessed to work in Hospice for the last ten years of my healthcare career.

Three years prior, Lora, John’s oldest sister, had died from bad fall and Cindy was showing symptoms of Huntington’s disease.  Both Marcia and Cindy were on my hospice program and died peacefully at a Residential Care Facility in Auburn.

We Can Never Lose HOPE……….

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a writer and blogger.  My website is: https://theresecrutchermarin.com

Love

A New Love In My Life

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.

As we wind down February, the month of love, John and I have a new love in our lives who entered our world on February 10, 2021 weighing in at six pounds one ounce and 21 inches long.

Her name is Marlena Cynthia Joan Marin, our first grandchild, and the new LOVE of our lives.  John and I spent several days with our son, Keith, and Fran, our daughter-in-law, once they came home from the hospital with Marlena. 

The minute I saw her, I fell in love with everything about her; her name, her angel face, her precious, little perfect body, her eyes that look like John’s father’s eyes, a deep blue.

At this time, she is a little miracle in this chaotic world we live in. She has reminded me of the power of love; it strengths us, feeds us, energizes us, and being deeply loved by someone gives us strength, while loving someone deeply gives us courage.

There is no greater power than loveLove has the ability to heal the world.

Love is pure and decent, innocent and  true.

  We Can Never Lose HOPE………..

HD Advocates, Love

Cheers & Blessings, Trey Gray

CELEBRITY DRUMMER ROCKS HUNTINGTON’S DISEASE AWARENESS

NEW HARTFORD, NY – With more than three decades in the music business, renowned drummer, Trey Gray, is beating more than just drums, he is beating the odds. Gray found his passion for music at the tender age of five.  In his early 20s, he relocated from South Bend to Nashville to pursue a professional career as a drummer. He played in local honky-tonks before landing an audition with Faith Hill, which became a huge turning point in  his career.                     

After seven years with Hill, he began to notice changes in his body. In 2003, Gray’s life changed forever when he was diagnosed with a genetic condition known as Huntington’s Disease (HD). What is Huntington’s disease The neurological disorder, characterized by the degeneration of the brain’s nerve cells, deteriorates a person’s cognitive and physical attributes, mimicking symptoms of ALS, Parkinson’s and Alzheimer’s diseases. At the time of his diagnosis 17 years ago,  Gray was given 10 to 15 years to live.

To help with awareness and funds to fight Huntington’s disease, Trey recently started TheTreyGrayFoundation

To read a full article on Trey and watch the newscast video, visit:  Trey Gray-drummer-to-the-stars-diagnosed-with-genetic-disease

 

We Can Never Lose HOPE……

For information on Huntington’s Disease, visit http://hdsa.org

Love, Therese-Author

A Reoccurring Dream

HDSA 2019 Convention

Lora, Cindy and Marcia Marin

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

I want to share a dream I’ve had on and off over the years.  A little information is needed to understand why I have this dream. John, my husband and his three sisters, were at risk for Huntington’s disease (HD); a fatal, rare, genetic brain disorder with NO CURE.  More About HD  

It seems I have the dream when I’ve had stressful times. It’s weird that I remember it because usually when I wake up and remember a dream, it fades through the day.

The dream I’m going to describe has been confusing but I now know why I’m having it; at least I think I know.   

In the dream, I’m a young woman, about 22-year old, walking along Market Street in San Francisco. It’s foggy, of course, and out of the fog walks John, who is very old, holding the hand of a little girl. I stop, stare at him and as he walks by, he smiles at me.  My hand goes over my mouth as I realize John is healthy, has no Huntington’s disease symptoms.

Over the years, I’ve pondered about this reoccurring dream and I’ve come to believe the dream validates my decision to marry John despite his unknown gene status for HD. Taking the biggest gamble of my life, following my heart, while being scared to death, was the right decision.

Article on Why Do We Dream-A sleep expert answers 5 questions

The Conversation.com/why-do-we-dream

We Can Never Lose HOPE………

Love

If I Fall Behind, Wait For Me

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

February has long been celebrated as a month of romance so all my blogs this month will be about love and romance.   History of Valentines Day

I’m truly a romantic at heart and I was lucky to find, marry and have a life with my soulmate, John Marin; the love of my life.  Although, there was a time in our relationship when I walked away from him, my mind was screaming,” If I fall behind, wait for me”.

John did just that; he waited, gave me space and time and I eventually found my way back to him.  Even though Huntington’s disease (HD) dominated our lives for over 30 years, created a lot of worry, stress and grief, I would do it all over again.  Love is our bond, a sacred, deep trust in each other.

Remember, the key to be lucky in love is when you let the other person’s desires ride as high in importance as what you want (and your partner does the same), you both feel loved and lucky and supported.  It is my wish to my fellowman and woman, that when you find true love, keep it close and never take it for granted.

To read John and my love story while living in the shadow of Huntington’s disease, look for my nonfiction book, Watching Their Dance:  Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s on many book websites.  It’s in kindle format, ebook, and hard copy.  amazonWatching-Their-Dance  thriftbooks.com/watching-their-dance

Besides being a romanticist, I’m a HD advocate, chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.

We Can Never Lose HOPE……. 

 

 

 

 

 

 

 

 

Hope, Kindness, Love

Am I Ever Happy to Celebrate the New Year!

From my family to yours, HAPPY NEW YEAR!

As a person who sees the glass half full instead of half empty, I’m looking for a return to some sense of normality and to having access to the vaccine and being able to relax and be hopeful. It will be a relief to see the job market rebound.  Bye, bye 2020 and welcome 2021.

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, volunteer and Chair for the Huntington’sDisease Society of America (HDSA) San Francisco Bay Area Affiliate.

My Author Website 

We Can Never Lose HOPE……..