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Love

HD Advocates, Love

Cheers & Blessings, Trey Gray

CELEBRITY DRUMMER ROCKS HUNTINGTON’S DISEASE AWARENESS

NEW HARTFORD, NY – With more than three decades in the music business, renowned drummer, Trey Gray, is beating more than just drums, he is beating the odds. Gray found his passion for music at the tender age of five.  In his early 20s, he relocated from South Bend to Nashville to pursue a professional career as a drummer. He played in local honky-tonks before landing an audition with Faith Hill, which became a huge turning point in  his career.                     

After seven years with Hill, he began to notice changes in his body. In 2003, Gray’s life changed forever when he was diagnosed with a genetic condition known as Huntington’s Disease (HD). What is Huntington’s disease The neurological disorder, characterized by the degeneration of the brain’s nerve cells, deteriorates a person’s cognitive and physical attributes, mimicking symptoms of ALS, Parkinson’s and Alzheimer’s diseases. At the time of his diagnosis 17 years ago,  Gray was given 10 to 15 years to live.

To help with awareness and funds to fight Huntington’s disease, Trey recently started TheTreyGrayFoundation

To read a full article on Trey and watch the newscast video, visit:  Trey Gray-drummer-to-the-stars-diagnosed-with-genetic-disease

 

We Can Never Lose HOPE……

For information on Huntington’s Disease, visit http://hdsa.org

Love, Therese-Author

A Reoccurring Dream

HDSA 2019 Convention

Lora, Cindy and Marcia Marin

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

I want to share a dream I’ve had on and off over the years.  A little information is needed to understand why I have this dream. John, my husband and his three sisters, were at risk for Huntington’s disease (HD); a fatal, rare, genetic brain disorder with NO CURE.  More About HD  

It seems I have the dream when I’ve had stressful times. It’s weird that I remember it because usually when I wake up and remember a dream, it fades through the day.

The dream I’m going to describe has been confusing but I now know why I’m having it; at least I think I know.   

In the dream, I’m a young woman, about 22-year old, walking along Market Street in San Francisco. It’s foggy, of course, and out of the fog walks John, who is very old, holding the hand of a little girl. I stop, stare at him and as he walks by, he smiles at me.  My hand goes over my mouth as I realize John is healthy, has no Huntington’s disease symptoms.

Over the years, I’ve pondered about this reoccurring dream and I’ve come to believe the dream validates my decision to marry John despite his unknown gene status for HD. Taking the biggest gamble of my life, following my heart, while being scared to death, was the right decision.

Article on Why Do We Dream-A sleep expert answers 5 questions

The Conversation.com/why-do-we-dream

We Can Never Lose HOPE………

Love

If I Fall Behind, Wait For Me

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

February has long been celebrated as a month of romance so all my blogs this month will be about love and romance.   History of Valentines Day

I’m truly a romantic at heart and I was lucky to find, marry and have a life with my soulmate, John Marin; the love of my life.  Although, there was a time in our relationship when I walked away from him, my mind was screaming,” If I fall behind, wait for me”.

John did just that; he waited, gave me space and time and I eventually found my way back to him.  Even though Huntington’s disease (HD) dominated our lives for over 30 years, created a lot of worry, stress and grief, I would do it all over again.  Love is our bond, a sacred, deep trust in each other.

Remember, the key to be lucky in love is when you let the other person’s desires ride as high in importance as what you want (and your partner does the same), you both feel loved and lucky and supported.  It is my wish to my fellowman and woman, that when you find true love, keep it close and never take it for granted.

To read John and my love story while living in the shadow of Huntington’s disease, look for my nonfiction book, Watching Their Dance:  Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s on many book websites.  It’s in kindle format, ebook, and hard copy.  amazonWatching-Their-Dance  thriftbooks.com/watching-their-dance

Besides being a romanticist, I’m a HD advocate, chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.

We Can Never Lose HOPE……. 

 

 

 

 

 

 

 

 

Hope, Kindness, Love

Am I Ever Happy to Celebrate the New Year!

From my family to yours, HAPPY NEW YEAR!

As a person who sees the glass half full instead of half empty, I’m looking for a return to some sense of normality and to having access to the vaccine and being able to relax and be hopeful. It will be a relief to see the job market rebound.  Bye, bye 2020 and welcome 2021.

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, volunteer and Chair for the Huntington’sDisease Society of America (HDSA) San Francisco Bay Area Affiliate.

My Author Website 

We Can Never Lose HOPE……..

Love

In Memory of James Keith Crutcher

My father and me in 2018

My father, James Keith Crutcher, is now gone from my sight.  On December 13th, 2020, he got his wings and flew to heaven to be reunited with my mother, Rita, the love of his life.  He was 91 years old and he will be greatly missed by his children, grandchildren, Trina his sister and other relatives.

Through this experience, I’m reminded that when we LOVE, we will experience tremendous grief when losing that person.

If you don’t open your heart to love, you will never know grief because grief and sorrow are the price we pay to LOVE. The death of someone you  LOVE  is one of the greatest sorrow that can occur.

Family

 

Jim, Trina & Ellen

 

 

We Can Never Lose HOPE…….

Family, Love

Alzheimers-Another Neurodegenerative Disease

Unfortunately, I now have experience with two (2) neurodegenerative disease; Huntington’s disease and Alzheimers.       

Author Therese Crutcher-Marin

What is Alzheimers       

What is Huntington’s disease

My family celebrated my father, James Keith Crutcher’s, 91st birthday on November 9th at Almond Gardens, a Residential Care Facility, where he now lives. Last year, the family noticed, that he was forgetting things, wasn’t keeping up the house and when he told us he wanted to move to a senior apt. complex that offered congregate meals, we moved him quickly.

I stayed a week with him in his new apartment to help with the transition.  I soon discovered, since I haven’t lived with my dad since I was 19, that he had dementia. He took many falls at the apt. after I left and had a subdural hematoma and had to have brain surgery.  He survived and John and I brought him to our home to rehab.  For (4) months, with the help of home health, he improved physically but mentally we saw a decline.  In August, he was diagnosed with Alzheimers; another cruel brain disease.

Alzheimer’s has quickly attacked my dad and my heart breaks as I watch my father slip away.  And now because of COVID-19, we cannot even visit.  I pray that one day he will not wake up and can be with my mother again in the heavens above.

We Can Never Lose HOPE…

 

 

 

 

Love, The Marin Siblings

Haunted by Three Lovely Ladies

Lora, Cindy and Marcia Marin

Since losing my three sisters-in-law, Lora, Marcia and Cindy Marin, to Huntington’s disease complications, at young ages, I am haunted by their memory.  John and I were by each of his three sisters’ side while they struggled with Huntington’s disease for 24 years. These experiences are embedded in my mind, heart and soul.

Lora, Cindy, Marcia Marin

Most people associate the word “haunt” as a bad, troubling experience, but to me “haunt” is: to recur persistently to the consciousness of; remain with; not easily forgotten.  I’m no psychologist but I believe I consciously chose to have Lora, Marcia and Cindy remain in my heart and, yes, creep into my consciousness everyday.  I believe this is my way of keeping their memory alive, honoring them because they tremendously influenced my life.

Maybe one day, after I’ve done my best to help the nonprofit, Huntington’s Disease Society of America (HDSA), these ladies will not live in the fore front of my mind and I will find peace knowing I’ve done everything I could to remember them. 

Author Therese Crutcher-Marin

We Can Never Lose HOPE……

To receive the first chapter of the nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, visit my author website Author Website  and sign up for my blog and I’ll email the chapter to you.  (signup is on right side of page)

 

 

Family, Love

What Do You Remember About Your Grandmother(s)?

I was blessed to have both of my grandmothers involved in my life and I have wonderful memories of them.  Both of my grandmothers, Christina Mary (Mages) Crutcher and Celena Barbara (Gable) McKibben were loving woman, who unfortunately, didn’t marry nice men.   

Christina Mary (Mages) Crutcher married at 17 and was a mother at 18 and her first granddaughter was born when she was 41.  What I remember about her is, she would take one of us, I have three (3) sisters, for a weekend and spoil us to death; we’d go to the movies and have popcorn and candy, play cards for hours and watch Let’s Make a Deal on TV.  These were special one-on-one time I had with her.     

Celena Barbara (Gable) McKibben had a tough life.  She and my grandfather split early in the marriage and didn’t divorce for many years.  My Grandmother had to work until she was in her late 70’s; first as a housemother to nursing students at St. Joseph Hospital and later as a companion to elderly women, living with them through the week and then living with one of her children on the weekends.  What I remember about her is, the hugs, smiles and giving us a quarter out of her little change purse when my sisters and I were going to TG&Y to buy candy.  She was a very giving, loving woman and her family was everything to her.

We Can Never Lose HOPE……….

Author Therese Crutcher-Marin

 

Love

My Heart Was In The Lost and Found

 

Boz Scaggs is John and my artist, a talented musician popular in the 1970’s.  Whenever I hear a Boz song, I’m taken back to college and to my then boyfriend, John Marin, before the Marin secret was revealed. artist boz-scaggs biography

Boz Scaggs song, Look What You’ve Done To Me, breaks my heart when I hear it.  Click here to listen to it:  https://youtu.be/hWrbelCfMvc

As I look at the pictures of my life with John through the years, my heart skips a beat because I almost didn’t live that life.  When Huntington’s disease (HD) suddenly entered our life, it scared me to death and I questioned whether our LOVE would be enough? What is HD?

Out of fear, I left the relationship and my heart lived in the Lost and Found. For the next seven months, I did a lot of soul-searching and my emotions were all over the place.  I was young and didn’t have many life experiences to shore up my doubts.

John eventually found my heart in the Lost and Found just as I discovered LOVE would get us through the years and if he got sick, I’d be there to care for him.  That’s what you do for the people that you LOVE.

I’m grateful every day that I have had with John, the LOVE of my  life, who is healthy, and thankful for his negative test for the mutated Huntingtin gene.  Sometimes you just have to take a chance and listen to your heart.  What is Huntington’s disease

HDSA 2019 Convention

Article on goodtherapy-love         7-ways-to-deal-with-uncertainty/

We Can Never Lose HOPE…

To read for the first chapter of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, go to my author website and sign up for my weekly blog. I’ll email you the 1st Chapter  https://theresecrutchermarin.com

Love, The Marin Siblings

A Letter to the Mother-in-Law I Never Knew

Phyllis Iva (Cahoon) Marin, the mother-in-law I never knew, has been on my mind through the years.  I wish I’d known her and I feel cheated not to have had her in my life. I’ve written a letter to her to express my feelings.

Dear Phyllis, 

My name is Therese Marie Crutcher-Marin and I married your kind-hearted son, John Anthony Marin and we will celebrate 40 years of marriage on Sept. 27th. 

I want to thank you for giving him to the world, a world where I was able to find him.  He is the love of my life and I’m ashamed to say I almost didn’t marry him, out of fear, because of the threat of Huntington’s disease.  If John had inherited the mutated huntingtin gene and became ill, I would have taken care of him, since that’s what I believe you do for the people you love.    

Your three daughters, Lora, Marcia and Cindy, were also benevolent, compassionate women and you would have been proud of the kind of people they became as adults.  I loved these women like they were my own sisters and I miss them everyday.  Unfortunately, Huntington’s disease stole them away from us, but rest assured, John and I took care of them through their long journey’s with this horrific disease.  

I find comfort knowing that the four of you are together in heaven, as it should be, a mother with her children, and I pray your souls find peace spending eternity together with our loving Father. 

I’m looking forward to meeting you one day.

Your devoted daughter-in-law, Therese

 

We Can Never Lose HOPE….

My author website is:  https://theresecrutchermarin.com

Author Therese Crutcher-Marin