Did you know Woody Guthrie died of Huntington’s disease? He died in 1967 and soon after that, his wife, Marjorie Guthrie, organized the Committee to Combat Huntington’s Disease (CCHD) that evolved into the Huntington’s Disease Society of America (HDSA).
You can download and read Marjorie’s story: Finding Our Way The Story of Woody and Marjorie Guthrie’s Fight Against Huntington’s Disease.
We Can Never Lose HOPE……
I’m a Huntington’s disease advocate having lost my three sisters-in-law, Lora, Marcia and Cindy to this horrific disease. Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is a nonfiction book that I published and 100% of the proceeds are being donated to the nonprofit, HDSA. Since publications, I’ve donated over $14,000.00.
Read a review. Kirkus Review: www.kirkusreviews.com/book-reviews/unknown/watching-their-dance/