There are many ways Huntington’s disease (HD) families/patients can contribute in moving forward in the understanding of HD that could find a cure or new therapies for the cruelest disease on the planet.
There many ways to get involved:
HD Trial Finder: Hope for tomorrow begins with your involvement today! HD Trialfinder is a clinical trials matching service: a way for individuals with Huntington’s disease, caregivers, healthy volunteers, and physicians to connect with current research studies.
Brain Donation for HD Research: To foster cutting-edge Huntington’s disease drug discovery research, there is great need for Brain donations from HD families. A brain donation is a gift of knowledge that is essential to enhance the understanding of HD.
My two sister-in-law, Marcia and Cindy, donated brain tissue for research. Although deciding to become a prospective brain donor can be difficult, signing up is a simple process.
Another way to become involved locally in the fight is to volunteer for a Huntington’s Disease Chapter or Affiliate
At this time, the HDSA San Francisco Bay Area Chapter is recruiting for many different volunteer positions. They are: Fundraising committee for the two Team Hope Walks, Day of event committee, Board member, HD Family Education Day committee and Blogger/writer. Please visit VolunteerMatch.org to read each position.
We Can Never Lose Hope…
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