Hope, Watching Their Dance

More on Updating the Nonfiction Book, “Watching Their Dance”

In the December 3rd blog, I posted about my editor suggesting I update the front cover of Watching Their Dance with a quote from the review I received from Kirkus Reviews.

Full Review:  https://www.kirkusreviews.com/watching-their-dance/

Since I published in 2017, many promising clinical trials have been started around the world, so I also updated pages 306 & 307, “Huntington’s Disease Update”.

Here is an Excerpt from “Huntington’s Disease Update” page 306.

Through the years, I have coined the statement, “Huntington’s disease is the cruelest disease on the planet”. While there is still no treatment or cure for this fatal progressive disease, the Huntington’s disease community has been blessed with good news and HOPE for a treatment has grown exponentially.

In April 2017, when I published Watching Their Dance, Ionis Pharmaceuticals, Inc. had just announced a potential treatment for Huntington’s disease; a gene-silencing program. Experts said it could be the biggest breakthrough in neurodegenerative disease in 50 years.   Ionis stated they had favorable results from its 1/2a trial with the drug, IONIS-HTTRx.

HTTRx targeted the huntingtin gene that provides instruction for creating a protein called huntingtin protein. The mutated huntingtin gene expands causing abnormal CAG counts that creates a toxin protein that kills the nerve cells in the brain, which causes Huntington’s disease.

Author Therese Crutcher-Marin

To continue moving forward, Ionis partnered with Roche Pharmaceuticals to conduct the clinical trials on the drug, now called RG6042. The trial is currently being conducted at 80-90 sites in 15 countries. There are 660 patients with early symptoms of Huntington’s disease enrolled in the study.

To visit my author website, click on link: https://www.theresecrutchermarin.com

We Can Never Lose HOPE……….

 

 

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