The Marin Siblings

Through The Eyes Of An Artist

My daughter, Vanessa, is a gifted artist and a few years ago she gave me a wonderful gift.

My husband, John, has Huntington’s Disease (HD) in his family.  Since his mother had the disease, he and his three (3) sisters we at risk for this fatal, rare, genetic brain disorder that has NO CURE.  41,000 Americans have the disease and approximately 200,000 live at risk.

The four (4) siblings were very close, so as each sister developed HD symptoms we moved them close to support them in their HD journey.  Over 24 years, our children, Keith and Vanessa, witnessed the disease progression in their aunts, starting at very young ages.  Needless to say, it was difficult for all of us.

A few years ago, Vanessa painted a picture that soothed my soul and made the hole in my heart a little smaller.   The picture is a mural on the wall in my home office.  It depicts three figures, I see angels, traveling to heaven. 

Because Vanessa was emotionally affected by the aunts HD experience, I believe, she painted the mural for her own mental health and took another step to always remember them; she tattooed the angels on her back.

We Can Never Lose HOPE………

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website:  https://theresecrutchermarin.com

Please make a donation to the nonprofit, Huntington’s Disease Society of America, to help fight HD.

 

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