Saturday was a beautiful, clear day and the walk on Chrissy Field offered a gorgeous view of the San Francisco Golden Gate Bridge. It was an awesome sight.
Team Hope Walk’s are HDSA fundraisers but it also serve other purposes. HD families gather as a community to support one another, to share stories and not feel forlorn and isolated. They know they are with their people; folks who are living the same life as they are. What is Huntington’s Disease?
By participating, they don’t feel alone and are happy they can do something to help HDSA move forward in research and providing services to HD patients and their families; i.e. HD support groups, Centers of Excellence to be cared for by doctors/therapists, nurses who are Huntington’s Disease specialist. If a family is new to HD, they can gather information and resources regarding HD.
This year in the U.S., approximately 99 Team Hope Walks will have been organized, raising money, heightening awareness and supporting the HD community. Huntington’s Disease Society of America Website (HDSA)
You can still donate to the event until December 31, 2019. http://www.hdsa.org/thwsanfrancisco
We Can Never Lose HOPE…..
I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease. We just announced that as of January 1, 2020, we will be a HDSA San Francisco Bay Area Affiliate. Amy Fedele is the Co-Chair, I’m the Chair. The Stanford and UCSF Centers of Excellence Teams are involved and it is our hope to increase our presence in the SF Bay Area that has a population of 7.1 million.
My author website is: https://www.theresecrutchermarin.com
You can read about my HD journey and the book I published, Watching Their Dance. 100% of the profits are being donated to the nonprofit, HDSA.