After the first of the year, I decided to step down from the Huntington’s Disease Society of America (HDSA) Northern California Chapter Board to collaborate with a group of Huntington’s disease (HD) advocates in the San Francisco Bay Area to develop a HDSA Affiliate.
With a population of approximately seven (7) million, a HDSA Affiliate that could evolve into a Chapter would support Huntington’s disease (HD) families. What is Huntington’s disease? Click here to learn about HD. http://hdsa.org
So what is an HDSA Affiliate?
An affiliate is a regional representative of HDSA that seeks to promote, assist, enhance and further HDSA’s mission by organizing solely for the purpose of carrying out HDSA’s programs, services and activities through the formation of an officially recognized HDSA Affiliate with a revocable license to use the HDSA name, intellectual property, materials and reputation for that sole purpose for so long as it is a recognized Affiliate. The reality is that an Affiliate is a “Chapter in Training”.
The paperwork has been filed with HDSA and the process could take up to six months to a year. We are hoping to have a decision from HDSA by the end of 2019.
We Can Never Lose HOPE………
I’m a Huntington’s disease advocate having lost my three sisters-in-law to this horrific disease. Watching Their Dance, my inaugural nonfiction book, is available on many book websites like Amazon. 100% of the profits are being donated to HDSA.