The Woody Guthrie Family

The Legacy of Woody Guthrie

During the summer of 2017, John and I trekked across the Midwest in our RV for three months, to promote my just published book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. 

I had spent a lot of time searching for Huntington’s Disease Society of America (HDSA) Team Hope Walks and HD support groups that I could attend on the trip.  Once that was complete, we mapped out the trip.

Two other places that I wanted to visit, was the Woody Guthrie Center in Tulsa Oklahoma, where I would hold a book discussion.    (Woody died from Huntington’s Disease (HD) complications.)

The second place was Woody’s hometown of Okemah Oklahoma, where the Woody Guthrie Folk Festival has been held for the past 21 years.  John and I spent four (4) days at WoodyFest and had a really great time.

Anna Canoni, Woody’s granddaughter, attended the 2019 HDSA Convention in Boston, she comes every year, and she congratulated me on the Woody Guthrie Advocacy Award I was presented with at the Gala.

Woody Guthrie Publications is administered by Woody Guthrie’s daughter Nora Guthrie and his granddaughter, Anna Canoni.

Her grandfather, Woody, and grandmother, Marjorie, are my hero’s and I’m proud to be an HD Advocate, helping to make a difference and hoping I will see a therapy/cure in my lifetime.

We Can Never Lose HOPE………………


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