The Woody Guthrie Family

The Legacy of Woody Guthrie

During the summer of 2017, John and I trekked across the Midwest in our RV for three months, to promote my just published book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. 

I had spent a lot of time searching for Huntington’s Disease Society of America (HDSA) Team Hope Walks and HD support groups that I could attend on the trip.  Once that was complete, we mapped out the trip.

Two other places that I wanted to visit, was the Woody Guthrie Center in Tulsa Oklahoma, where I would hold a book discussion.  https://woodyguthriecenter.org/    (Woody died from Huntington’s Disease (HD) complications.) https://en.m.wikipedia.org/wiki/Woody_Guthrie

The second place was Woody’s hometown of Okemah Oklahoma, where the Woody Guthrie Folk Festival has been held for the past 21 years.  John and I spent four (4) days at WoodyFest and had a really great time.   https://www.woodyfest.com/

Anna Canoni, Woody’s granddaughter, attended the 2019 HDSA Convention in Boston, she comes every year, and she congratulated me on the Woody Guthrie Advocacy Award I was presented with at the Gala.

Woody Guthrie Publications is administered by Woody Guthrie’s daughter Nora Guthrie and his granddaughter, Anna Canoni. https://www.woodyguthrie.org/contact.htm

Her grandfather, Woody, and grandmother, Marjorie, are my hero’s and I’m proud to be an HD Advocate, helping to make a difference and hoping I will see a therapy/cure in my lifetime.

We Can Never Lose HOPE………………

 

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