Ten years ago this month, John and I lost the last two members of his immediate family. His father, I called him Big John, passed away from bladder and colon cancer at age 86. Cindy, my third sister-in-law would succumb four weeks later, to the monster I grew to despise, Huntington’s disease, at age 54.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. http://www.hdsa.org
It was a difficult time for us, to say the least, and the twenty-four years of anticipatory grief had taken its toll. John and I had each other, that was so important, and we slowly regained our strength. It was shortly these losses that I began searching for something good that could come out of my family’s tragedy. I found it in my story.
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website https://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from Therese’s book is being donated to HD organizations around the world.
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