I was blessed to have worked the last 10 years of my career in a local hospice program that allowed me to truly help my neighbors. Grief, of course, was an emotion our patients experienced and part of our mission was to provide comfort to the bereaved.
The Huntington’s disease community, unfortunately, is suffering from three types of grief: anticipatory grief, pandemic grief and grief from two promising clinical trials that were halted.
Wave Life Sciences news-release-provides-update-phase-1b2a-precision-hd.
So, let’s Channel our grief into Action! We are HD STRONG!
Each one of us can CHANNEL our GRIEF into ACTION. The following are suggestions of ways to get involved with the nonprofit, Huntington’s Disease Society of America (HDSA):
- HD Research Trial Finder
- The HD Parity Act Caucus
- Get Involved with a HDSA Chapter/Affiliates
- Get Involved with HDSA NYA
There are other Huntington’s disease organizations you can be involved with:
We Can Never Lose HOPE………….
I’m a HD advocate, Chair for HDSA San Francisco Bay Area Affiliate, an author and a blogger.
100% of the proceeds from my book, is donated to the nonprofit, HDSA.