“This study is Stanford IRB-approved and is an Huntington’s Disease Society of America (HDSA) sanctioned study. I designed it as a part of my master’s research project for Stanford’s genetic counseling program. I’ve been working with Leora Fox at Huntington’s Disease Society of America (HDSA) https://www.linkedin.com/in/leora-fox-28a59562/to help get the word out. It is advertised on the HDSA website at this time, and support group leaders should be sending out information soon.”
To participate in the survey, go to:
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We Can Never Lose HOPE……….
100% of the profits from Watching Their Dance, a nonfiction, inspirational love story while living in the shadow of Huntington’s, is being donated to the nonprofit, HDSA.