I have to admit anger started seeping out of my pores when Cindy became symptomatic. She was the third sister-in-law to fall prey to this monster; Huntington’s disease. When I started noticing symptoms, I was in denial and ignored it; I didn’t even talk to John about it, but soon it was hard to disregard. As she declined, my anger got worse; I just wanted to take a baseball bat to the monster and make it hurt like I hurt. What is HD
For those experiencing this emotion, know, anger in itself is a natural reaction to grief and loss; it’s a normal part of grief. If you are feeling this way, please seek help from a counselor and/or attend a Huntington’s disease support group.
The book, Griefland is written by a friend of mine, it’s a great book, and it’s available at https://www.lulu.com/shop/search.ep?keyWords=griefland&type=
Unfortunately, Huntington’s disease causes many losses to a person with the disease; i.e., loss of independence, loss of being in control, loss of a job, etc. Watching a loved one decline may cause anger issues with the care partner/family.
I feel blessed that by writing my story, it was a healing journey, I was able to release the anger I harbored toward HD.
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website https://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the profits from the book is being donated to Huntington’s Disease Society of America (HDSA).
We Can Never Lose HOPE………….
May is Huntington’s Disease Awareness Month