Survival

How I Lived with the Uncertainty of Huntington’s Disease

 

Author Therese Crutcher-Marin

I would say certainty is almost always preferable to uncertainty because we humans like to know!  It was critical for me to know the who, what, where, when and why in my life because being in control calmed my Obsessive Compulsive Disorder (OCD) symptoms. Being out of control threw me into an uncertainty-induced anxiety.

In 1978, the Huntington’s disease (HD) monster was introduced into my life.  John, the love of my life, had an unknown gene status for this fatal, genetic disorder that progressively destroyed the nerve cells in the brain. At that time, I was forced to decide if I could live with this huge unknown factor in my life, uncertainty, and if I did choose that path, could I live happily and not be a basket case.

When I decided to marry John, I realized I had to adapt to a life of uncertainty; change my way of thinking, learn to focus on the positive, find ways not to worry about the future.  So, I began searching for something reliable to grab ahold of.  I discovered four (4) strategies to embrace to make uncertainty bearable.

  1. Live mindfully
  2. Have forgiveness in my heart
  3. Cling to HOPE and to John
  4. Don’t sweat the small stuff

We Can Never Lose HOPE…………………….

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is a poignant remembrance of a love forged in crisis. To purchase the book, go to amazon 

My Author Website is:  https://theresecrutchermarin.com

100% of the proceeds from book sales, is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA).

 

 

 

 

 

 

 

 

 

Photo credit: One Way Stock via Foter.com / CC BY-ND & Photo credit: DES Daughter via Foter.com / CC BY-NC-SA

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