HD Community

Rare Disease Day- February 29th

Celebrate RARE DISEASE DAY with Huntington’s Disease Society of America (HDSA)        

Leap years come every four years and this year we have an extra day to reflect, celebrate life, but most importantly – raise awareness for our Huntington’s Disease (HD) family.

This year, Rare Disease Day falls on that extra day, February 29th, 2024. The RAREST day of the year! For the HD community, this means an extra day to support each other, to spread the word about HD, and to advocate for all rare diseases.

HDSA is joining forces with individuals from over 7,000 rare diseases affecting 300 million people, their families, and carers to raise awareness about rare disorders like HD.

Check out https://www.rarediseaseday.org/ to learn more about the rare disease community and the events happening worldwide.  Visit hdsa.org/rarediseaseday to join us in turning up the global volume for Huntington’s disease awareness and to support HD research and world-class HD resources for families across the country. 

We Can Never Lose HOPE…..  

I’m a Huntington’s disease (HD) advocate, President of the HDSA San Francisco Bay Area Chapter, a blogger and an author.  Visit my website  https://theresecrutchermarin.com

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