There are approximately 7,000 rare diseases in the world and Huntington’s disease (HD) is one of them. National Organization for Rare Disorders
To truly understand the rarity of HD, you just have to look at the numbers. It’s staggering how rare HD is around the world. Information on Huntington’s disease
The prevalence of Huntington’s Disease (HD) has been reported to vary with ethnicity and geographical location, confirming that demographic differences influence the number and composition of individuals with HD. Since HD is believed to have major origins in Northern Europe, it is not surprising that populations of Northern European descent are recorded as having the highest prevalence of HD in the world.
In the United Kingdom (UK) there are 12.4 per 100,000 persons or 1 out of every 8,065 individuals may be affected with HD. Huntington Study Group
Other countries where Huntington’s is particularly prevalent include Ireland (10.6 per 100,000); Norway (6.7); Italy (6.35); Australia (6.3); Denmark (5.8); Great Britain (5.4); Slovenia (5.2); and Sweden (4.7). Huntingtons Disease News
N.neurology.org estimated the true HD prevalence in the US to be 41,467, while the number of persons currently diagnosed is at least 21,331.
The percentage of Americans living with HD is .014 of the U.S. population. We are a very small population and that’s why HD is considered a RARE DISEASE. (A disease is considered rare, when it affects less than 200,000 people)
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100% of proceeds from book sales is donated to the nonprofit, HDSA. http://hdsa.org