Huntington's Disease

Prevalance of Huntington’s Disease

There are approximately 7,000 rare diseases in the world and Huntington’s disease (HD) is one of them. National Organization for Rare Disorders

Author Therese Crutcher-Marin

To truly understand the rarity of HD, you just have to look at the numbers.  It’s staggering how rare HD is around the world.  Information on Huntington’s disease

The prevalence of Huntington’s Disease (HD) has been reported to vary with ethnicity and geographical location, confirming that demographic differences influence the number and composition of individuals with HD.  Since HD is believed to have major origins in Northern Europe, it is not surprising that populations of Northern European descent are recorded as having the highest prevalence of HD in the world.

In the United Kingdom (UK) there are 12.4 per 100,000 persons or 1 out of every 8,065 individuals may be affected with HD.  Huntington Study Group

Other countries where Huntington’s is particularly prevalent include Ireland (10.6 per 100,000); Norway (6.7); Italy (6.35); Australia (6.3); Denmark (5.8); Great Britain (5.4); Slovenia (5.2); and Sweden (4.7).  Huntingtons Disease News

N.neurology.org  estimated the true HD prevalence in the US to be 41,467, while the number of persons currently diagnosed is at least 21,331.

The percentage of Americans living with HD is .014 of the U.S. population.  We are a very small population and that’s why HD is considered a RARE DISEASE. (A disease is considered rare, when it affects less than 200,000 people)

Author Therese Crutcher-Marin Book Signing in Auburn CA

I’m a Huntington’s Disease Advocate, Chair for HDSA San Francisco Bay Area Affiliate, a blogger and author or Watching Their Dance. Watching the Dance Huntingtons Disease

To purchase the book, go to amazon.com/Watching-Their-Dance-Marrying-Huntingtons

100% of proceeds from book sales is donated to the nonprofit, HDSA.  http://hdsa.org

HDSA San Francisco Bay Area Affiliate Facebook page

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