Author Therese Crutcher-Marin, HD Advocate
The HDSA San Francisco Bay Area Affiliate is hosting an Online Silent Auction to help fund
resources available to individuals or a family when they learn that their mother, father, grandmother, etc. has or had Huntington’s disease (HD), like my family did. It’s life changing.
The good news is that the nonprofit, Huntington’s Disease Society of America (HDSA) has grown over the years and offers many resources to HD families. Unfortunately, at this time, there is no cure or therapy for the rare, fatal, genetic brain disorder yet, but the resources available can greatly improve the quality of life to a person struggling with the disease.
To view all HDSA online resources, visit HDSA Community & Social Support website.
We Can Never Lose HOPE…
2 Comments
Hello my name is Jamie I am 42 years old I have three children my father lost his mom and her side of the family to Huntington’s my dad was diagnosed at the age of 42 he was put into a nursing home about 50 he had more of the Parkinson’s movements side of it I am having the cognitiveIssues I lost my dad two years ago
Hi Jamie,
Thank you for sharing your HD story. I’m so sorry to hear your father’s family had HD and you are now experiencing symptoms. HD is the cruelest disease on the planet My husband’s mother had HD and his 3 sisters have died from HD complications. If you don’t know. the nonprofit, Huntington’s Disease Society of America has many online free services for HD families. Don’t lose Hope because there are many promising clinical trials being conducted around the world.
I wish you and your family the best.