Love

My Heart Was In The Lost and Found

 

Boz Scaggs is John and my artist, a talented musician popular in the 1970’s.  Whenever I hear a Boz song, I’m taken back to college and to my then boyfriend, John Marin, before the Marin secret was revealed. artist boz-scaggs biography

Boz Scaggs song, Look What You’ve Done To Me, breaks my heart when I hear it.  Click here to listen to it:  https://youtu.be/hWrbelCfMvc

As I look at the pictures of my life with John through the years, my heart skips a beat because I almost didn’t live that life.  When Huntington’s disease (HD) suddenly entered our life, it scared me to death and I questioned whether our LOVE would be enough? What is HD?

Out of fear, I left the relationship and my heart lived in the Lost and Found. For the next seven months, I did a lot of soul-searching and my emotions were all over the place.  I was young and didn’t have many life experiences to shore up my doubts.

John eventually found my heart in the Lost and Found just as I discovered LOVE would get us through the years and if he got sick, I’d be there to care for him.  That’s what you do for the people that you LOVE.

I’m grateful every day that I have had with John, the LOVE of my  life, who is healthy, and thankful for his negative test for the mutated Huntingtin gene.  Sometimes you just have to take a chance and listen to your heart.  What is Huntington’s disease

HDSA 2019 Convention

Article on goodtherapy-love         7-ways-to-deal-with-uncertainty/

We Can Never Lose HOPE…

To read for the first chapter of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, go to my author website and sign up for my weekly blog. I’ll email you the 1st Chapter  https://theresecrutchermarin.com

About Author

A Tough Decision That Changed My Life

Author Therese Crutcher-Marin

Have you been confronted with a tough decision, a life altering choice that will have a huge impact on the rest of your life?  Folks call it, “A fork in the road” and I had a very difficult decision, which road to take, at age 22.

Excerpt from the nonfiction book, Watching Their Dance: Chapter 1, paragraph 1

Some lives seem to move smoothly along a natural continuum, with one event or decision seeming to slide into the next. Such people seem to have faced no dramatic forks in the road, had few life-altering choices to make. Other lives, at least in hindsight, travel in a particular direction at one particular life-changing moment. That’s what happened to me, when, at age twenty-two, I suddenly had to confront the most complicated decision of my life.

To read about the road I chose and the life I had, sign up for my weekly blog at https://theresecrutchermarin.com and I’ll email you the first chapter of my nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  What is Huntington’s disease

Watching the Dance Huntingtons Disease100% of the cost of the book is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA) to help in the fight against Huntington’s disease.  To date, I’ve donated $15,000.00.  About HDSA

The nonfiction book is available on many book websites:  amazon.com    barnesandnoble.com   amazonkindle

We Can Never Lose HOPE……

 

 

About Author

The Empathy Gene

The word Empathy is the ability to imagine oneself in the condition of another; a vicarious participation in another’s emotions.

My mother holding me during my first Christmas

My mother, Cleo Rita (McKibben) Crutcher gifted me the Empathy Gene, a gene I was happy to receive. She was a kind hearted person who could empathize when others suffered losses, tragedies, helping however she could.

As a small child I saw compassion in my mothers daily activities.  One example I remember was when my sisters and I were sitting in the backseat of the car and we passed a car accident. As our car slowed down to pass the accident, I don’t know what exactly my mom saw, but she began to weep and began praying for the victims.

Articles on:     How to be more empathetic 

Psychologytoday.com/us/basics/empathy

I’m writing about the Empathy Gene, a positive gene to have because I write about the huntingtin gene, the mutated gene that causes Huntington’s disease (HD), the cruelest disease on the planet. HD symptoms are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously and there is NO CURE. What is HD?

I focus on the huntingtin gene because I’m a Huntington’s Disease Advocate, having lost my mother-in-law and three sisters-in-law to this horrific disease.

It feels good to write about the Empathy Gene that’s a good gene to have in your family.

Author Therese Crutcher-Marin

Thanks Mom for your gift of empathy. (Jan. 12, 1930-July 19, 2006)

We Can Never Lose HOPE…………

Therese Crutcher-Marin author website:  https://theresecrutchermarin.com

Love, The Marin Siblings

A Letter to the Mother-in-Law I Never Knew

Phyllis Iva (Cahoon) Marin, the mother-in-law I never knew, has been on my mind through the years.  I wish I’d known her and I feel cheated not to have had her in my life. I’ve written a letter to her to express my feelings.

Dear Phyllis, 

My name is Therese Marie Crutcher-Marin and I married your kind-hearted son, John Anthony Marin and we will celebrate 40 years of marriage on Sept. 27th. 

I want to thank you for giving him to the world, a world where I was able to find him.  He is the love of my life and I’m ashamed to say I almost didn’t marry him, out of fear, because of the threat of Huntington’s disease.  If John had inherited the mutated huntingtin gene and became ill, I would have taken care of him, since that’s what I believe you do for the people you love.    

Your three daughters, Lora, Marcia and Cindy, were also benevolent, compassionate women and you would have been proud of the kind of people they became as adults.  I loved these women like they were my own sisters and I miss them everyday.  Unfortunately, Huntington’s disease stole them away from us, but rest assured, John and I took care of them through their long journey’s with this horrific disease.  

I find comfort knowing that the four of you are together in heaven, as it should be, a mother with her children, and I pray your souls find peace spending eternity together with our loving Father. 

I’m looking forward to meeting you one day.

Your devoted daughter-in-law, Therese

 

We Can Never Lose HOPE….

My author website is:  https://theresecrutchermarin.com

Author Therese Crutcher-Marin

 

Marketing

Sports Basement Sponsors Virtual Run/Walk for Huntington’s Disease

Sports Basement, a sports store in the San Francisco Bay Area, is a sponsor for the upcoming Huntington’s Disease Society of America (HDSA) San Jose VIRTUAL Team Hope 10K Run & 5K Walk on June 20, 2020. 

The HDSA Run/Walk raises funds to help support Huntington’s disease (HD) resources in the Bay Area. Consider helping in the fight against HD, a rare, fatal, genetic brain disorder that has NO CURE. What is HD

The event is FREE to Join:  https://pacificreg.hdsa.org/about/2020-san-jose-team-hope-walk   

Donations are welcomed and appreciated.

Make a Donation here 

Sports Basement is offering great discounts from June 13 through June 28th.  If you are a Basementeer you receive another % off, and you can designate the nonprofit, HDSA, as your charity to donate a certain % of your purchase to them.  It’s FREE money for HDSA and doesn’t take any work at all. https://shop.sportsbasement.com/

Sign up to be a Basementeer:  https://shop.sportsbasement.com/products/basementeer-membership-1  BASEMENTEER LIFETIME MEMBERSHIP $25.00 ONE-TIME FEE

Please share with friends, and family and post on your social media platforms.
Sports Basement locations:   Berkeley, Novato, Campbell, Presidio, Redwood City, San Francisco Bryant St., San Ramon, Santa Rosa, Sunnyvale, Walnut Creek.  https://shop.sportsbasement.com/blogs/stores

We Can Never Lose HOPE….

Fundraising

Raffle Prizes at HDSA Virtual Event on June 20th

Fran & Keith Marin, Event Coordinators

When you sign up for the 1st San Jose VIRTUAL Team Hope 10K Run & 5K Walk, you will be entered into 11 raffles.

Photo by alykat on Foter.com / CC BY

It’s FREE to join and donations are welcomed and appreciated!  hdsa.org/about/2020-san-jose-team-hope-run/walk

Pictures & value of the 11 raffle prizes.

$25

$116.00 value

$50.00 value

$25.00 value

$50.00 value

$200.00 value

two free meal items

$17.00 value

$65.00 value

         

Proceeds from the fundraiser, goes to the nonprofit, HDSA, to help in the fight against Huntington’s disease.  http://hdsa.org

We Can Never Lose HOPE…..

 

2017 Book Tour, About Author

A Three Month Book Tour Journey

Three (3) years ago today, John and I headed out in our new 30 ft. RV, headed for the Midwest to promote the nonfiction book I had just published, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. amazon-Mrs.-Therese Crutcher-Marin

The Huntington’s Disease Society of America (HDSA) Annual Convention was being held Schaumburg IL that year and part of the book tour was to attend the convention where I would sell the book. One of reasons I wrote the book was to donate 100% of the proceeds to HDSA; two other reasons were to heighten Huntington’s disease (HD) awareness and honor my three sisters-in-law who had passed away from HD complications. hdsa/annual-convention/2017-2/

John and I spent three months touring the Midwestern states, Nebraska, Kansas, Ohio, Michigan, Wisconsin, Illinois, Missouri, attending 11 HDSA Team Hope Walks, engaging with families at Walks, listening to their HD stores, talking with TEVA reps and selling the book. 

In July, we attended the four (4) day Woody Guthrie Folk Festival in Okemah OK, birthplace of Woody Guthrie. It was hotter than hades but a wonderful experience.  I was thrilled to meet some of the Arlo Guthrie family members.  We also visited the Woody Guthrie Center in Tulsa OK and I held a book discussion with community members.  Woody Guthrie Folk Festival/2017-book-tour/

John and I returned home at the end of August 2017, and I wanted to keep traveling, but we needed to get back to reality. 

We Can Never Lose HOPE……

My author website:  https://theresecrutchermarin.com

Author Therese Crutcher-Marin

 

 

 

HDSA

HDSA Virtual 35th Annual Convention

When COVID-19 became a reality, around March 11th, 2020, it changed so much in our daily lives and forced us to do things differently, like changing a fundraiser/event/convention to VIRTUAL events.  Also, Huntington’s disease families had grave concerns how the virus would affect their loved ones living with Huntington’s disease.

The 35th Annual Huntington’s Disease Society of America Convention, that I usually attend, was switched to a VIRTUAL event, and redesigned in a matter of about 30 days! It was amazing at the speed HDSA changed it to Virtual.

John and I were looking forward to traveling to New Orleans, that’s where the convention was supposed to be held, because we usually add on two weeks for a vacation. What I missed most of all by it being virtual, were the hugs from friends and reconnection  with friends who we look forward to seeing each year at the convention.

HDSA did not disappoint and I commend them for offering the convention for free which was a wonderful gift to global Huntington’s disease community.  The sessions offered were timely, uplifting, and informative especially on Saturday, June 6th, with the updates on clinical trials.

HDSA recorded every session and they will be available for viewing from this link in a couple of weeks:  https://hdsa.org/about-hdsa/annual-convention/

Here are few of the slides on information from Roche/Genentech Article on Antisense Therapy on tominersen  and WAVE Life Sciences Wave-Life-Sciences that was presented.

Dr. Jeff Carroll and Dr. Ed Wild lead a session, “Ask the Scientist Anything”

 

 

 

 

  

We Can Never Lose HOPE…………

 

A Love Story

A Land of Hope and Dreams

Author Therese Crutcher-Marin

We all know how music and the lyrics to a song can trigger emotions and take us back to different times in our lives.   Music can touch your soul; reminiscent of special times in your life or challenging ones.

In the AFTERWORD section of the nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, I wrote a poem.  I’m really not a poet but Bruce Springsteen’s song, Land of Hope and Dreams, inspired me to write about my own hope and dreams in the mist of living with the threat of Huntington’s disease. 

To purchase the book, go to:   amazon.com/Watching-Their-Dance 

https://www.barnesandnoble.com/w/watching-their-dance-therese-marie-crutcher-marin/1126082854

100% of the cost of the book is donated to the nonprofit, Huntington’s Disease Society of Americahttp://hdsa.org 

An excerpt: 

“We’re all riders on a train traveling through life.  The choices we make on the journey determine the weight of our load.  When confronted with tough times, many discover they must lighten their load. 

John Anthony Marin, my key rider, willingly disembarked in 1978, while I struggled with the direction of my train.  Eventually, I circled back to find him waiting patiently for me.  He boarded my train again, and together, we rolled through the fields of life where sunshine streams and set a new destination, a land of hope and dreams.” 

We Can Never Lose HOPE…..   

Please visit my author website for more information on Huntington’s disease and book:  https://theresecrutchermarin.com

 

 

Fundraising, HDSA San Francisco Bay Area AFFILIATE

A Virtual 10K Run & 5K Walk for Huntington’s Disease

It’s count down time!  Eighteen (18) days until the San Jose VIRTUAL Team Hope 10K Run & 5K Walk to help in the fight against Huntington’s disease.  (June 20th)

It’s FREE to join!  Donations are welcomed and appreciated!

Join, signup, here for the Run and Walk

The HDSA San Jose Team Hope 10K Run & 5K Walk is usually held at Campbell Park on the Los Gatos Creek Trail, but due to the Coronavirus, the event was changed to a VIRTUAL fundraiser.

     FUNDRAISE FOR PRIZES!

Due to the economic impact of COVID-19, we anticipate raising most of our funds through peer-to-peer fundraising.  And we want to reward you for your hard work and effort!  

Local RAFFLE: (gift cards will be mailed)

Photo by alykat on Foter.com / CC BY

RAISE $500 & YOU’LL BE ENTERED INTO A RAFFLE FOR:

$100 Gift Card for “The Table” restaurant in Willow Glen
$100 Gift Certificate from “Sprouts Farmers Market”

MORE REASONS TO RUN & WALK

To help support and reward your amazing fundraising achievement to support the HDSA mission, HDSA is launching new Incentives!

$100+: HDSA Team Hope T-Shirt

$125+: HDSA Family is Everything Brandanna (facecovering)

$500+: HDSA Team Hope Contigo Water Bottle

$1,000+: HDSA Portable Cooler Totebag

$2000+: HDSA Stadium Blanket

The T-shirts and Face coverings will be shipped on a regular basis as the fundraising goals are met.  The water bottle, cooler and stadium blanket will be shipped in December for fundraising achievements through November 30, 2020

We Can Never Lose HOPE….