Grief

The Grief Of A Nation-The Loss of Our Loved Ones

A year ago, like all Americans, we were living a normal life, working, going to the gym, picking up our children at school, going on vacations.  During this time my 90-year-old father, James Keith Crutcher, was showing signs of dementia, forgetfulness, an unsteady gait, and, unbeknownst to my sister and me, taking many falls in his home.

Thus began the rapid decline of my father’s health and the anticipatory grief that was growing in my heart.  At the same time, COVID-19 was spreading like wild fire, the American people were quarantined and the number of Americans dying increased daily.

This week, America reached 500,000 deaths, and counting, from the Coronavirus, and we are a nation in deep grief. I mourn the loss of my father and at the same time, the loss of 500,000 American’s.

Last Monday, the United States of America took time to recognize the loss of our loved ones for which I’m  grateful.

My father died on December 13, 2020 after taking a bad fall and breaking his neck.  Unfortunately, he had to have surgery, or be paralyzed from the neck down.  Because of the pandemic, my family couldn’t be with my dad when he was in the hospital.  We got him home with hospice care and he died three days later.

I pray with time, our nation can recover from all we have lost and heal from this devastating COVID-19 pandemic.

We Can Never Lose HOPE…..

Author Therese Crutcher-Marin

I’m a Huntington’s Disease Advocate, the Chair for the Huntington’s Disease Society of American San Francisco Bay Area Affiliate, a blogger and an author.  My website is https://theresecrutchermarin.com

 

 

 

 

 

 

HD Advocates, Love

Cheers & Blessings, Trey Gray

CELEBRITY DRUMMER ROCKS HUNTINGTON’S DISEASE AWARENESS

NEW HARTFORD, NY – With more than three decades in the music business, renowned drummer, Trey Gray, is beating more than just drums, he is beating the odds. Gray found his passion for music at the tender age of five.  In his early 20s, he relocated from South Bend to Nashville to pursue a professional career as a drummer. He played in local honky-tonks before landing an audition with Faith Hill, which became a huge turning point in  his career.                     

After seven years with Hill, he began to notice changes in his body. In 2003, Gray’s life changed forever when he was diagnosed with a genetic condition known as Huntington’s Disease (HD). What is Huntington’s disease The neurological disorder, characterized by the degeneration of the brain’s nerve cells, deteriorates a person’s cognitive and physical attributes, mimicking symptoms of ALS, Parkinson’s and Alzheimer’s diseases. At the time of his diagnosis 17 years ago,  Gray was given 10 to 15 years to live.

To help with awareness and funds to fight Huntington’s disease, Trey recently started TheTreyGrayFoundation

To read a full article on Trey and watch the newscast video, visit:  Trey Gray-drummer-to-the-stars-diagnosed-with-genetic-disease

 

We Can Never Lose HOPE……

For information on Huntington’s Disease, visit http://hdsa.org

HD Advocates

Trey Gray An Inspiration

The following Article was written March 2020 before the Pandemic.

Author Therese Crutcher-Marin

“Trey Gray is on tour right now with some of the biggest names in country music. His personal struggles with a debilitating disease are also taking up a lot of his time.

He suffers from Huntington’s Disease . He was diagnosed back in 2003. From the onset of symptoms, the life expectancy of Huntington’s is about 10 to 15 years. It’s been 17 years since Gray started having symptoms. It’s why Gray is enjoying doing what he loves and spreading awareness about his challenges.”
To watch Trey’s video, Beating the Odds of Huntington’s Disease, click here:  https://youtu.be/aJlLD-EvT1Y

Trey has four (4) children who are at risk for the mutated huntingtin gene.  He was instrumental in creating the Huntington’s Disease Foundation  another Huntington’s disease organization raising awareness, supporting families, funding research and finding a cure.

Trey wrote a blurb after reading my book, Watching Their Dance, and it appears on the back cover above Kate Miner’s blurb.  

We Can Never Lose HOPE….

I’m an Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, author and a blogger.  Visit my  Author/HD Advocate Website

Please donate to the nonprofit, Huntington’sDisease Society of America, and help us eradicate this incurable brain disorder.

 

 

Family

The Marin Baby Enters The World Today

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives. 

My family has a new person to love in our family; Fran and Keith, our son and daughter-in-law, will become parents TODAY, February 10, 2021

I have to admit, I lie in bed and night and dream about the Marin baby.  Keith and Fran will make great parents; they  each other dearly and that’s what matters.

I‘m a Huntington’s Disease (HD) Advocate, Chair for the nonprofit, HDSA San Francisco Bay Area Affiliate, a blogger and an author. Visit my Author/HD Advocate website:https://theresecrutchermarin.com

We Can Never Lose HOPE……

 

 

 

 

Love, Therese-Author

A Reoccurring Dream

HDSA 2019 Convention

Lora, Cindy and Marcia Marin

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

I want to share a dream I’ve had on and off over the years.  A little information is needed to understand why I have this dream. John, my husband and his three sisters, were at risk for Huntington’s disease (HD); a fatal, rare, genetic brain disorder with NO CURE.  More About HD  

It seems I have the dream when I’ve had stressful times. It’s weird that I remember it because usually when I wake up and remember a dream, it fades through the day.

The dream I’m going to describe has been confusing but I now know why I’m having it; at least I think I know.   

In the dream, I’m a young woman, about 22-year old, walking along Market Street in San Francisco. It’s foggy, of course, and out of the fog walks John, who is very old, holding the hand of a little girl. I stop, stare at him and as he walks by, he smiles at me.  My hand goes over my mouth as I realize John is healthy, has no Huntington’s disease symptoms.

Over the years, I’ve pondered about this reoccurring dream and I’ve come to believe the dream validates my decision to marry John despite his unknown gene status for HD. Taking the biggest gamble of my life, following my heart, while being scared to death, was the right decision.

Article on Why Do We Dream-A sleep expert answers 5 questions

The Conversation.com/why-do-we-dream

We Can Never Lose HOPE………

Love

If I Fall Behind, Wait For Me

February is the month of love – a time for Valentine’s Day and remembering love – emphasizing the importance of love in our lives.     

February has long been celebrated as a month of romance so all my blogs this month will be about love and romance.   History of Valentines Day

I’m truly a romantic at heart and I was lucky to find, marry and have a life with my soulmate, John Marin; the love of my life.  Although, there was a time in our relationship when I walked away from him, my mind was screaming,” If I fall behind, wait for me”.

John did just that; he waited, gave me space and time and I eventually found my way back to him.  Even though Huntington’s disease (HD) dominated our lives for over 30 years, created a lot of worry, stress and grief, I would do it all over again.  Love is our bond, a sacred, deep trust in each other.

Remember, the key to be lucky in love is when you let the other person’s desires ride as high in importance as what you want (and your partner does the same), you both feel loved and lucky and supported.  It is my wish to my fellowman and woman, that when you find true love, keep it close and never take it for granted.

To read John and my love story while living in the shadow of Huntington’s disease, look for my nonfiction book, Watching Their Dance:  Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s on many book websites.  It’s in kindle format, ebook, and hard copy.  amazonWatching-Their-Dance  thriftbooks.com/watching-their-dance

Besides being a romanticist, I’m a HD advocate, chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.

We Can Never Lose HOPE……. 

 

 

 

 

 

 

 

 

Lessons Learned

How We Respond When Things Are Out of Our Control

Author Therese Crutcher-Marin, HD Advocate

“Forces beyond your control can take away everything you possess except one thing, your freedom to choose how you will respond to the situation.”  Dr. Viktor E. Frankl, holocaust survivor and the author of “Man’s Search for Meaning”. amazon.com/Mans Search For Meaning

I always have to remind myself of this statement when something unexpected, upsetting, or out of my control occurs in my life.  Living with John’s unknown gene status for Huntington’s disease (HD) for 36 years was extremely difficult for me.  The only way to lower my anxiety was to be in control but HD would not be controlled.  What is HD

I was fortunate to have four wonderful people in my life who had the most positive attitudes; John, Lora, Marcia and Cindy Marin.  They showed me, by the way they lived and approached life’s challenges, how to deal with the uncertainty in their lives; they were at risk for Huntington’s disease.  They accepted their destiny, whatever it might be, with gratitude, strength and love.

To learn five (5) lessons from Dr. Viktor E. Frankl, watch this video.  It’s definitely worth the watch.https://youtu.be/eyXFQ5W0bMk

We Can Never Lose HOPE…..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, Chair for HDSA San Francisco Bay Area Affiliate, a blogger and author.  Visit my HD Advocate/Author website theresecrutchermarin.com  to find information on Huntington’s disease and read the reviews I received on my book.  Watching the Dance Huntingtons Disease

100% of proceeds from the book is being donated to the nonprofit, Huntington’s Disease Society of America.  http://hdsa.org

 

HD Advocates

Huntington’s Disease and Kate Miner

Kate Miner and her family are very involved in the fight against Huntington’s Disease (HD).  Kate, an actress, musician, singer, Huntington’s Disease (HD) advocate, mother and star of the sitcom, ShamelessMore on Tumblr about Kate and Shameless

Her sister, Jenne Coler-Dark is gene positive for Huntington’s Disease and has two children at risk.  She found out HD was in her family in 2014 and has been working to advocate for patients, and raise funds for HDSA ever since.

In 2016, Jenne along with her family hosted the Freeze HD event in Los Angeles.  She continues to participate in the Huntington’s Disease Society of America (HDSA) annual Freeze  HD Event, along with other HD volunteer engagements with HDdenNoMore, and CHDI Foundation  .   Jenne is on the Board of Trustees for the nonprofit, HDSA.

VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA.  Video of Virtual 6th Annual Freeze HD on 9-26-2020youtu.be/RrAXlgDvURo

We Can Never Lose HOPE…………..

I’m a HD advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and the author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  amazonWatching-Their-Dance-Marrying-Huntingtons Watching the Dance Huntingtons Disease

Author Therese Crutcher-Marin

Helping Others, Taking Care of Yourself

During the Pandemic Stretch It Out For Huntington’s Disease

Author Therese Crutcher-Marin

Good Morning Huntington’s Disease Community!         

The Pandemic continues to confine us to our home waiting for our turn to receive the vaccination, so I want to share with you my exercise routine that John and I do about 4-5 times a week.

I hope you will consider incorporating in your day, stretching and getting your heart rate up by marching in place, as an example.  It truly helps you stay positive, feel good about yourself, and uplifts you mentally.

I’m not an exercise expert, I’m giving some suggestions to help you through your day at home.

To watch me huff and puff on the stationary bike, click here:  https://youtu.be/SwHBNkMRB8k

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, Chair for the San Francisco Bay Area Affiliate, a blogger and a writer.

 

 

We Can Never Lose HOPE…… 

My Author Website:  https://theresecrutchermarin.com

For more information on Huntington’s disease, please visit:  http://hdsa.org

Huntington's Disease

A Negative Test for Huntington’s Disease

HDSA 2019 Convention

Five years ago, in December 2015, John and I visited the HDSA UC Davis HDSA Center of Excellence to start the process to learn John’s gene status for Huntington’s disease.  Mara Sifry-Platt, genetic counselor recorded family history, Dr. Vicki Wheelock physically examined John and a psychiatrist evaluated his mental health.      

John and I had lived with HOPE since 1979, when Lora, Marcia and Cindy, discovered their mother had Huntington’s disease and they each had a 5/50 chance on inheriting the  mutated huntingtin gene.             

Why did John decide to be tested at this time, you ask?  Both of our children, Keith and Vanessa, had become engaged and John felt he owned it to them to know his gene status because it would impact their lives.  HDSA the nonprofit that is fighting Huntington’s disease 

On January 16, 2016, after a six (6) week wait for the results, John and I sat anxiously in a room at UC Davis Center of Excellence holding hands.  We held our breath as Dr. Wheelock gave us the answer we had hoped for.  John was negative!!!!!  It was the happiest day of our lives!

We Can Never Lose HOPE…….