Honoring Huntington’s Disease Caregivers During November

November is National Family Caregivers Month, a time to recognize and honor family caregivers across the country.

As a former caregiver to my two (2) sisters-in-law who had Huntington’s disease, Marcia and Cindy Marin, there was contentment, and sadness, in caring for these two ladies that I loved. My personal goal was to honor their dignity, keep them independent and comfortable as long as possible. The sadness I felt was heartfelt watching them slowly lose everything, their independence, unable to work, unable to do activities of daily living; bathing or showering, dressing, getting in and out of bed or a chair, walking, using the toilet, and eating.

Caregivers who care for Huntington’s disease (HD) loved ones have a huge challenge; HD’s journey is long, 10-20 years.  The neurodegenerative diseases, HD, ALS, Parkinson’s, Alzheimers can stretch out for years.  

This takes a toll on caregivers so caregivers must take care of themselves.  The reality is, if you as a caregiver become ill, stressed where you cannot take care of your loved one, what happens to them?

This blogs main purpose is to provide a link to HD Caregiver Support Groups.  They are online so easily accessed. Here are a couple coming up. 

We Can Never Lose HOPE…..

I’m a Huntington’s disease (HD) advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  100%  of  book  sales  is donated  to  the  nonprofit,  HDSA.  

Amazon link-   Watching Their Dance