Huntington's Disease

Sessions Available from the 36th Annual Huntington’s Disease Society of America Convention

Hi, I’m Therese Crutcher-Marin, Huntington’s Disease Advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an Author.

Huntington’s Disease (HD) is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Alzheimers and Parkinson’s disease at the same time.  There is NO CURE.  41,000 Americans are symptomatic and approximately 200,000 live at-risk of inheriting the mutated huntingtin gene that causes the disease.

If you were unable to watch sessions presented at the virtual Huntington’s Disease Society of America (HDSA) Convention last June, that you wanted to attend, 49 sessions were recorded.  Here’s a few of the sessions. 

Juvenile HD 101

Clinical Trials Part 1

SSDI, SSI, DISABILITY, HEALTHCARE PLANNING FOR HD

TESTING POSITIVE ACCEPTANCE TIMELINE: THE ROLLERCOASTER RIDE OF ACCEPTING AND LIVING YOUR LIFE

FAMILY PLANNING WHEN HD IS IN THE FAMILY

To see all the sessions, please go to 36TH ANNUAL CONVENTION 

36th Annual Convention Welcome and Keynote from HDSA on Vimeo.

 

 

 

 

We Can Never Lose HOPE……

Please make a donation to the nonprofit, Huntington’s Disease Society of America, to help fight HD.

Previous Post Next Post

You Might Also Like

No Comments

Leave a Reply