Hi, I’m Therese Crutcher-Marin, Huntington’s Disease Advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an Author.
Huntington’s Disease (HD) is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Alzheimers and Parkinson’s disease at the same time. There is NO CURE. 41,000 Americans are symptomatic and approximately 200,000 live at-risk of inheriting the mutated huntingtin gene that causes the disease.
If you were unable to watch sessions presented at the virtual Huntington’s Disease Society of America (HDSA) Convention last June, that you wanted to attend, 49 sessions were recorded. Here’s a few of the sessions.
Juvenile HD 101
Clinical Trials Part 1
SSDI, SSI, DISABILITY, HEALTHCARE PLANNING FOR HD
TESTING POSITIVE ACCEPTANCE TIMELINE: THE ROLLERCOASTER RIDE OF ACCEPTING AND LIVING YOUR LIFE
FAMILY PLANNING WHEN HD IS IN THE FAMILY
To see all the sessions, please go to 36TH ANNUAL CONVENTION