HD Awareness

Marin (Cahoon) Family Hit Hard by Huntington’s Disease

Phyllis Marin

As we celebrate Huntington’s Disease Awareness Month, I reflect on the Marin Family’s Huntington’s disease journey through the generations.  John’s mother side of the family, the Cahoon’s, battled Huntington’s disease (HD) and it’s overwhelming how many members of this family were affected.

HD is a rare, fatal, genetic brain disorder that has all the symptoms of ALS, Alzheimers and Parkinson’s disease.  There is NO CURE and when a parent has HD, the children have a 50/50 chance of inheriting the mutated huntingtin gene that causes the disease.

The Cahoon family history of  Huntington’s disease dates back at least 4 generations. 

John’s great grandfather- Wilbert D. Cahoon

John’s grandfather-Charles Wilbur Cahoon

John’s mother-Phyllis Iva (Cahoon) Marin

Lora, Cindy, Marcia Marin

John’s three sisters: Lora, Marcia and Cindy

John tested in 2016 at the Center of Excellence at UC Davis Medical Center in Sacramento.  He tested anonymously and was negative for the mutated huntingtin gene.  His three sisters didn’t have children and with John negative results, Huntington’s disease is no longer in our family.

We Can Never Lose HOPE…..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website:  https://theresecrutchermarin.com 

 

 

 

 

 

 

 

 

 

 

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