HD Awareness

What Is The Cruelest Disease on the Planet? I Say Huntington’s Disease

May is Huntington’s Disease Awareness Month   

Lora, Cindy and Marcia Marin

As far as I’m concerned Huntington’s disease (HD) is the cruelest disease on the planet.  John and I lost his three sisters, Lora, Marcia and Cindy from HD complications at ages 41, 49 and 54. Marcia and Cindy struggled with HD for 15 and 17 years.  Lora, self-medicated with alcohol, took a bad fall and had a cerebral hemorrhage and died.

HD is a rare, fatal, genetic brain disorder that has NO CURE.  The symptoms are like having ALS, Parkinson’s and Alzheimers at the same time.   American’s have the disease and 16% of all cases are children with Juvenile Huntington’s disease (JHD). Approximately 200,000 live at risk for inheriting the mutated huntingtin gene from their parent that has the disease.  

#LetsTalkAboutHD with actor Jeff Meacham. Watch Jeff Meacham talk about HD

Please help the nonprofit, Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate fight this disease by donating to fund research, fund two (2) HD clinics at Stanford and UCSF Medical Center, three (3) local HD support groups, online support groups, and many free online resources.

Thank you in advance.  Please Make your donation here.

We Can Never Lose HOPE…

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