Therese-Author

May is Huntington’s Disease Awareness Month

 

Facts about Huntington’s disease:

1. Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities, usually during their prime working years, and has no cure … yet.

2.  Today, there are approximately 41,000 symptomatic Americans living with Huntington’s disease and more than 200,000 at-risk of inheriting HD. 10% of all HD cases are children with Juvenile HD.

3.  Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. 10% of all cases are Juvenile HD  juvenile-onset-hd/

For more information about Huntington’s disease, click here:  http://hdsa.org

We Can Never Lose Hope…

Kate Miner, her mother & 2 sisters.

Kate Miner, actress, musician, and HD advocate comes from an HD family. To read the article about her family, visit.   Kate Miner-I come from an hd family

Trey Grey, drummer, HD gene positive and HD advocate shares his story.  https://grottonetwork.com/navigate-life/health-and-wellness/huntington-disease-story/

Author Therese Crutcher-Marin

My author website:  https://theresecrutchermarin.com

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2 Comments

  • Reply Page Cole May 21, 2020 at 2:06 pm

    I loved you book, tho I am sorry for all the pain your family went through.
    A friend of mine has HD, she is in the early stages. 3 has 3 teenagers. I Pray a cure or better treatment comes soon.

    • Reply crutcht May 24, 2020 at 11:58 am

      Hi Page, Thank you for your kind words. The HD community is filled with HOPE since there are many HD clinical trials being conducted around the world. HOPE is what sustained me during my three sisters-in-law journey with HD, and, of course, having John by my side also.

      Please share the book with others who know little about HD. One of the reasons I wrote the book, was to heighten HD awareness.

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