May is HD Awareness Month

May is Huntington’s Disease Awareness Month

Author Therese Crutcher-Marin

MAY is Huntington’s Disease Awareness Month

My name is Therese Crutcher-Marin and I’m kicking off Huntington’s Disease Awareness Month.  For forty years, I’m a Huntington’s disease (HD) advocate, Chair for HDSA San Francisco Bay Area Affiliate, a blogger and the author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.   My author website:

 #LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month to encourage families to share their experiences with HD throughout the month of May.

Many people are not familiar with Huntington’s disease and Juvenile Huntington’s disease (HD) and have never seen a person or child with HD or JHD.

HD is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimers – simultaneously.  Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease.      

                          There is NO CURE, YET!

10% of all HD cases are children with Juvenile Huntington’s Disease.


We Can Never Lose Hope……

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