HD Advocates

Kate Miner and Huntington’s Disease

Kate at a HDSA Convention with Michael Miller

May is Huntington’s Disease Awareness Month!

Kate Miner is from a Huntington’s disease (HD) family.  She is an actress, musician, singer and advocate for HD.  Her mother has the disease and her two (2) sisters are HD positive. Kate’s sister, Jenne Coler-Dark is on the  Huntington’s Disease Society of America (HDSA) Board of Trustees. Kate and her Hollywood friends started the HDSA HD FREEZE fundraiser and this year will be its 8th year.  Before the Pandemic, approximately $400,000.00+ was raised and the last two years it was virtual and raised approximately $200,000.00.   Thank you Kate for the advocacy work you do for the  Huntington’s disease community

May is HD Awareness Month.  Huntington’s disease is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimer’s at the same time and there is NO CURE.  41,000 American’s have the disease & 200,000 live at risk.

Please consider donating to the nonprofit, HDSA, to help fight the disease by conducting research, funding HD clinics and HD support groups around the country, and many free online resources.  Since there is NO CURE, HDSA provides services/resources to help HD families have the highest quality to their lives.   

 

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease (HD) advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website and learn about HD:  https://theresecrutchermarin.com

 

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