I celebrate this day in her memory and acknowledge the strength, courage, tenacity, positivity and kindness that Marcia showed toward me and others. She was the second child born to John and Phyllis Marin, and having a parent with Huntington’s disease (HD) Marcia had a 50/50 chance of inheriting the mutated huntingtin gene from her mother, Phyllis Iva (Cahoon) Marin.
Marcia, at the young age of 30, was the first of my three sisters-in-law to show symptoms of Huntington’s disease. What is Huntingtons disease
Marcia’s first symptoms, that I noticed in 1980, were twitches and an unsteady gait. By the time she was 34 years old, she was retired from AT&T; unable to continue working because of forgetfulness, loss of concentration and coworkers and supervisor believing she was drunk on the job. She struggled with Huntington’s disease for 15 years and died on September 8th, 1999 at age 49.
I wish her story had been different and we could have enjoyed life together. I wish my children, Keith and Vanessa, could have had time with this wonderful person who would have been an awesome aunt.
The nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s is an inspirational love story while living with the uncertainty of my husband, John, inheriting the fatal brain disorder, Huntington’s disease, which has NO CURE. book reviews