May is Huntington’s Disease Awareness Month
John and I are watching the Netflix show, “Madam Secretary” which is a fictional television drama that follows the work of Elizabeth McCord, the United States’ Secretary of State. Madam Secretary Official Site
In Season 2, Episode 6; Catch and Release episode, Huntington’s disease (HD) is used in the storyline. http://www.hdsa.org
The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously. There is NO CURE for the disease.
Also, the drug Tetrabenazine, is used in the story. Tetrabenazine is a drug for the symptomatic treatment of hyperkinetic movement disorders. It is sold under the brand names Nitoman and Xenazine among others.
On August 15, 2008, the U.S. Food and Drug Administration approved the use of tetrabenazine to treat chorea associated with Huntington’s disease.
We Can Never Lose HOPE…………….
I’m a Huntington’s disease advocate having lost my three sisters-in-law, Lora, Marcia and Cindy to this horrific disease. Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is a nonfiction book that I published and 100% of the proceeds are being donated to the nonprofit, HDSA. You can find it on many book websites like Amazon. https://www.amazon.com/Watching-Their-Dance