HDSA Fundraising events


Author Therese Crutcher-Marin

A global audience of nearly 4,000 tuned into the Virtual 6th Annual Freeze HD event on Saturday, September 26th which raised $200,000 to support the fight against Huntington’s disease (HD).  Due to the COVID-19 pandemic, the Huntington’s Disease Society of America (HDSA) transitioned the world’s largest and most-anticipated HD fundraising event to a virtual format.

Hosted live by actor Scott Porter from a secure location in Los Angeles, Freeze HD featured an incredible online auction, live music with Brian Logan Dales from The Summer Set and dozens of videos from celebrities offering their support in the fight against HD.

Missed the show? No problem! CLICK HERE TO WATCH THE RECORDING OF THE VIRTUAL 6TH ANNUAL FREEZE HD. Donations are still being accepted to support the event by visiting HDSA.org/freezehd!

HD is described as a combination of ALS, Parkinson’s & Alzheimer’s. This devastating brain disorder, with no cure, is known as the quintessential family disease because each child of a parent with HD has a 50% chance of inheriting the gene that causes HD.

“Each year, Freeze HD is star-studded call to action to stop Huntington’s disease in its tracks.   While we missed gathering in person, hosting the event virtually reached the global HD community and allowed more families to connect and be inspired in this fight,” said HDSA’s President & CEO Louise Vetter.  More about the nonprofit Huntington’s Disease Society of America

We Can Never Lose HOPE….




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