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Living At Risk for Huntington’s Disease

Author Therese Crutcher-Marin
Christmas in 1976 when John & I were in college

No one can image what it is like to Live At Risk for the cruelest disease on the planet; Huntington’s disease. What-is-HD This rare, hereditary brain disorder, is like having ALS, Alzheimers and Parkinson’s at the same time, has no cure and strikes during prime working years. It’s difficult to understand, unless you have lived it.

This picture describes the process I went through when John and his three sisters discovered they were at risk for Huntington’s disease. https://www.habitsforwellbeing.com/the-3-cs-of-life-choices-chances-changes/

First, I had a CHOICE; to marry John and live a life AT RISK or turn away from him forever.

I took the chance & lived happily every after

Second, I took the biggest CHANCE of my life and married him knowing the possible consequences of my decision.

Third, in order to live fully everyday with the love of my life, I had to CHANGE my way of thinking.

Fortunately, John did not inherit the mutated huntingtin gene. huntingtin protein and protein-aggregation Huntington’s disease enriched my life because John nor I took anything for granted.

100% of the profits from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is being donated to the nonprofit, HDSA. Therese has gifted $14,100.00 to HDSA since publishing the book in April 2017. amazon.com/Watching-Their-Dance

We Can Never Lose HOPE….

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