May is Huntington’s Disease Awareness Month
Dawn Green and I are President’s of a Huntington’s Disease Society of America (HDSA) Chapter; Dawn leads the HDSA Northern California Chapter and I organize the HDSA San Francisco Bay Area Chapter. HDSA is a nonprofit and 90% volunteer based. There are 53 Chapters and Affiliates across the U.S. and all are managed by volunteers.
Huntington’s disease (HD) is a rare, fatal, brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimers, simultaneously. There is NO CURE.
Because HD is very rare, HDSA’s business model focuses on its Mission Statement: HDSA is dedicated to improving the lives of everyone affected by Huntington’s disease and their families. HDSA fulfill’s their mission by providing programs and services to HD families across our nation so they may have the highest quality to their lives on their long HD journey.
HDSA’s Vision Statement: A World Free of Huntington’s Disease HDSA also conducts research in the search for a cure or
During this important month for Huntington’s disease, please go to HDSA.org to learn about the disease and consider making a donation to help in the fight against this horrific disease.
List of resources:
Online Support Groups: HDSA.ORG/OSG
Telehealth: HDSA.ORG/TELEHEALTH
HD Trialfinder: HDTRIALFINDER.ORG
HDSA’s National Youth Alliance: HDSA.ORG/NYA
Youth Mentorship Program: HDSA.ORG/YMP
Disability Resources: HDSA.ORG/DISABILITY
Locate Resources in Your Area: HDSA.ORG/LOCATERESOURCES
We Can Never Lose HOPE…
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