Let’s Kick Off Huntington’s Disease Awareness Month Today!

#LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month to encourage families to share their experiences with Huntington’s Disease(HD) throughout the month of May. Huntington’s disease is described as having ALS, Parkinson’s and Alzheimer’s diseases – simultaneously and there is

NO CURE. 

Click here to find #Let’s Talk About HD Toolkit, video’s of celebrities supporting HD Awareness Month, how to make your twibbon frame, social media scripted posts you can use in your social media platforms.

Okay HD Families across the country! Help us educate the world about the devastating impact that HD has on families.  Use the logo in your social media posts to get the word out.    

To watch the short kickoff video, click here.

Most people have not heard of HD and those who have heard the name, Huntington’s disease, do not know how it devastates families for generations.   

My husband’s family has had HD in the last five generations.  John’s mom had HD as did his three (3) sisters, an aunt, two (2) uncles, his grandfather who committed suicide, and his great grandfather.  John has distant cousins in the Carmel Valley, Salinas CA area that are struggling with HD.