Jenne Colar-Dark has been a member of the Huntington’s Disease Society of America (HDSA) Board of Trustees for over a year. https://hdsa.org/about-hdsa/board-of-trustees/
Jenne is gene positive for Huntington’s Disease (HD) and has two children at risk. She found out HD was in her family in 2014 and has been working to advocate for patients, and raise funds for HDSA ever since.
In 2016, Jenne along with her family hosted the Freeze HD event in Los Angeles. She continues to participate in the HDSA annual Freeze HD event, along with other HD volunteer engagements with HDdenNoMore, and CHDI.
Jenne graduated from the University of San Francisco with a degree in International Business. She has worked for Experian for the last 13 years in a variety of roles from Professional Services, Account Management, and Program Management.
After living in the Bay Area for over a decade, Jenne and her family relocated back to Southern California to be closer to her mom and sisters.
Kate wrote a book jacket comment that appears on the front of my nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. 100% of the profits are being donated to HDSA. To date, John and Therese have donated $14,115.00. Therese’s author website: https://www.theresecrutchermarin.com