Most people wouldn’t agree that it’s a gift to grow old. If you have Huntington’s disease (HD) in your family, you probably would agree. HD is a rare, fatal, genetic brain disorder that has all the symptoms of ALS, Parkinson’s and Alzheimers at the same time and there is NO CURE. For more information go to: http://hdsa.org or visit my author website at: https://theresecrutchermarin.com
Unfortunately, HD is in John’s family and his three (3) sisters inherited the mutated huntingtin gene and are gone from our sight. Each year on the birthday of Lora, Marcia and Cindy, John and I always talk about what age they would be and what they would look like. Lora died at age 41, Marcia at 49, Cindy at 54 and their mother, Phyllis, at 48.
Through the years, our hearts have carried the loss of the sisters and is felt more intensely during the holidays and special occasions because we still want them to be with us. We can never celebrate a birthday, Christmas, Thanksgiving dinner or just hang out. We miss even something so simple as picking up the phone to talk with them. What I wouldn’t do to see these kindhearted, nonjudgemental women, who taught me about mindfulness, forgiveness, and unconditional love.
We Can Never Lose HOPE…………