In 1978, I was in love with a man, John Anthony Marin, who had an unknown gene status for Huntington’s disease (HD), the cruelest disease on the planet. HD is a rare, fatal, genetic brain disorder that has all the symptoms of ALS, Parkinson’s and Alzheimers at the same time, strikes at prime working years, and is a long progressive disease; 10-20 years. http://www.hdsa.org
After deciding to marry John, and knowing the possible consequences of my decision, I found the perfect wedding invitation in 1980.
“In this world of uncertainty and confusion, we two have found one another, different yet alike. We have grown together in love and understanding. Please join us in celebrating a day of genuine happiness on Saturday, September 25, 1980 at 7 in the evening.”
I couldn’t have said it any better, and quite frankly, other than family, no one understood the underlying message. The key being “UNCERTAINTY”. theresecrutchermarin My-Story
We Can Never Lose HOPE……….
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Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from Therese’s book is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA). As of December 31, 2018, John and Therese have donated $14,115.00 to HDSA. The book was published in April 2017.