Huntington's Disease

Help Pass the Huntington’s Disease Parity Act!

Author Therese Crutcher-Marin

The Huntington’s Disease Society of America (HDSA) has been advocating for several years to get the Huntington’s Disease Parity Act passed.

The Act would waive the Medicare two year waiting period, thereby ensuring individuals receive critical health benefits and care in the early stages of the disease.

To read an in depth description of the Act, visit HDParityActBill.pdf       AND

Jennifer Simpson, LCSW Senior Manager, Advocacy & Youth Programs, at HDSA, leads the fight.

HDSA makes it easy to help get the bill passed by creating a letter to send to our local politicians to request they pass the bill.  It’s easy!!!    Please visit this website to send a letter to your Congressman(s). write-a-letter to your Congressman

Please take the time to send the letter and let’s get the HD Parity Act passed so no Huntington’s disease family member has to wait two years to have medical coverage.

We Can Never Lose HOPE……………………


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