Kate Miner and her family are very involved in the fight against Huntington’s Disease (HD). Kate, an actress, musician, singer, Huntington’s Disease (HD) advocate, mother and star of the sitcom, Shameless. More on Tumblr about Kate and Shameless
Her sister, Jenne Coler-Dark is gene positive for Huntington’s Disease and has two children at risk. She found out HD was in her family in 2014 and has been working to advocate for patients, and raise funds for HDSA ever since.
In 2016, Jenne along with her family hosted the Freeze HD event in Los Angeles. She continues to participate in the Huntington’s Disease Society of America (HDSA) annual Freeze HD Event, along with other HD volunteer engagements with HDdenNoMore, and CHDI Foundation . Jenne is on the Board of Trustees for the nonprofit, HDSA.
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA. Video of Virtual 6th Annual Freeze HD on 9-26-2020youtu.be/RrAXlgDvURo
We Can Never Lose HOPE…………..
I’m a HD advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and the author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. amazonWatching-Their-Dance-Marrying-Huntingtons