There are many Huntington’s disease (HD) champions among us and many that are gone from our sight; some are celebrities, some everyday people who are tirelessly heightening awareness of HD.
Some champions among us are: Musician Kate Miner, Pitcher Joe Smith, Journalist Charles Sabine, Scientist Nancy Wexler, movie producer Chris Furbee, Dr. Ed Wild, Dr. Jeff Carroll, Coach Mark Helfrich, Health & Fitness Guru Shana Verstegen, Louise Vetter and Drummer Trey Grey. (There are others that belong on the list) Those gone from our sight but not gone from our hearts are Woody & Marjorie Guthrie, Dr. George Huntington.
My sisters-in-law, Lora, Marcia and Cindy, are my champion’s as they are the driving force behind what I do for the Huntington’s disease community.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The nonfiction book I penned, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on my author website https://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from my book is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA).
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