It’s Not Just A Story About A Family Challenged by Huntington’s
The nonfiction book I penned, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is much more than the Marin Family being challenged by Huntington’s but a story of love, commitment and devotion.
When I set out to write the memoir, my goals were to heighten Huntington’s disease (HD) awareness, honor my three (3) sisters-in-law and generate funds to donate to the nonprofit, Huntington’s Disease Society of America (HDSA). As the story unfolded, I was always brought back to one of the themes of the book, unconditional love. (other themes in the book are mindfulness and hope)
Watching Their Dance
Watching Their Dance is John and my enduring love story while living in the shadow of the HD. At the beginning of our marriage and HD journey, John and I committed that HD would not tear us apart, that our lovewould create a bond so strong that nothing could come between us.
I’m so glad you enjoyed the book and hopefully you gave it to someone else to read. I’m sorry to hear you are early stage HD. I tell folks to not lose HOPE because there are 50 companies working on therapies/cure for HD and I pray some of these are successful and come to fruition in your lifetime. Hugs!
2 Comments
I loved the book lost copy but loved it I am.in early stages of hd
Hi Karim,
I’m so glad you enjoyed the book and hopefully you gave it to someone else to read. I’m sorry to hear you are early stage HD. I tell folks to not lose HOPE because there are 50 companies working on therapies/cure for HD and I pray some of these are successful and come to fruition in your lifetime. Hugs!