The Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate is conducting a new outreach strategy in the greater San Jose area. Huntington’s disease (HD), a rare, fatal, genetic brain disorder, is not known by most people. If they have heard of HD, they don’t know the details of how it affects a person and their family for generations.
HDSA Affiliate volunteers, Uma, David, Jay and myself are manning a table at the Campbell Farmers Market on Sundays from 9 am-1 pm spreading the word about the Cruelest Disease on the Planet; Huntington’s disease, and there is NO CURE.
41,000 American’s have the disease and approximately 200,000 live at risk of inheriting the mutated huntingtin gene that causes the disease. Of those 41,0000 symptomatic Americans, 16% are children with Juvenile Huntington’s disease.
By our outreach efforts, we hope to reach Bay Area folks who are struggling with HD and inform them of the services available to their family.
We Can Never Lose HOPE…
Please make a donation to the nonprofit, Huntington’s Disease Society of America (HDSA) and help us in the fight against HD.