HD Advocates, HD Awareness

Heightening Huntington’s Disease Awareness in the San Francisco Bay Area

The Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate is conducting a new outreach strategy in the greater San Jose area.   Huntington’s  disease (HD),  a rare,  fatal,  genetic brain  disorder,  is  not  known  by  most  people.  If  they  have  heard  of  HD,  they  don’t  know the  details  of  how  it  affects  a person  and  their  family  for  generations.  

HDSA Affiliate volunteers, Uma, David, Jay and myself are manning a table at the Campbell Farmers Market on Sundays from 9 am-1 pm spreading the word about the Cruelest Disease on the Planet; Huntington’s disease, and there is NO CURE.

41,000 American’s have the disease and approximately 200,000 live at risk of inheriting the mutated huntingtin gene that causes the disease.  Of those 41,0000 symptomatic Americans, 16% are children with Juvenile Huntington’s disease.  

By our outreach efforts, we hope to reach Bay Area folks who are struggling with HD and inform them of the services available to their family.  

We Can Never Lose HOPE…

Author Therese Crutcher-Marin

Please make a donation to the nonprofit, Huntington’s Disease Society of America (HDSA) and  help us in the fight against HD.

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