HDSA

HDSA Virtual 35th Annual Convention

When COVID-19 became a reality, around March 11th, 2020, it changed so much in our daily lives and forced us to do things differently, like changing a fundraiser/event/convention to VIRTUAL events.  Also, Huntington’s disease families had grave concerns how the virus would affect their loved ones living with Huntington’s disease.

The 35th Annual Huntington’s Disease Society of America Convention, that I usually attend, was switched to a VIRTUAL event, and redesigned in a matter of about 30 days! It was amazing at the speed HDSA changed it to Virtual.

John and I were looking forward to traveling to New Orleans, that’s where the convention was supposed to be held, because we usually add on two weeks for a vacation. What I missed most of all by it being virtual, were the hugs from friends and reconnection  with friends who we look forward to seeing each year at the convention.

HDSA did not disappoint and I commend them for offering the convention for free which was a wonderful gift to global Huntington’s disease community.  The sessions offered were timely, uplifting, and informative especially on Saturday, June 6th, with the updates on clinical trials.

HDSA recorded every session and they will be available for viewing from this link in a couple of weeks:  https://hdsa.org/about-hdsa/annual-convention/

Here are few of the slides on information from Roche/Genentech Article on Antisense Therapy on tominersen  and WAVE Life Sciences Wave-Life-Sciences that was presented.

Dr. Jeff Carroll and Dr. Ed Wild lead a session, “Ask the Scientist Anything”

 

 

 

 

  

We Can Never Lose HOPE…………

 

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