In 1988, when two of my sisters-in-law, Lora and Marcia Marin were struggling with Huntington’s disease (HD), I became obsessed with increasing John’s Life insurance. He was employed by Placer County and as a manager he received a free $50,000.00 life insurance policy. What is HD
To protect my family and to lower my anxiety, I felt $50,000.00 was inadequate, because of John’s at risk status for HD, and set my sights on securing a private life insurance policy for John.
Well, I wish GINA had been established at that time because I applied to ten (10) Life Insurance companies and John was denied by all of them. The Genetic Information Non-Discrimination Act (GINA) created new protections against the misuse of genetic information by health insurance companies and employers. Go here for FAQ’s about GINA. what-is-gina-and-when-does-it-take-effect
I remember the question that was on the applications that was the cause the denial: “If a parent is deceased, what was the cause of their death?” I wrote, “Huntington’s disease”.
We Can Never Lose HOPE……..
Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is available on Therese’s author website http://www.theresecrutchermarin.com and many book websites like Amazon