After I married John Marin, who had an unknown gene status for Huntington’s disease, we did what most newlyweds do; live together in an apartment, a couple of years later purchasing a house and couple of years after that, talking about children.
I was very naive and John left me with the decision to have our own biological children or adopt. It was a difficult decision to make alone. I convinced myself that in 30-40 years, if John had the mutated huntingtin gene and the children inherited it, there would be a cure or therapy for symptoms, so I chose to have our children, Keith and Vanessa.
Wow, was I wrong. 30-40 years sounds like a long time, but when it comes to the brain, it is not. The brain is certainly the least understood organ in the human body.
As I have blogged many times, there is HOPE, with 50+ companies and 50+ pipeline drugs in Huntington’s Disease pipeline landscape.
We Can Never Lose HOPE…..
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