Hope

I Was Naive

After I married John Marin, who had an unknown gene status for Huntington’s disease, we did what most newlyweds do; live together in an apartment, a couple of years later purchasing a house and couple of years after that, talking about children.

I was very naive and John left me with the decision to have our own biological children or adopt.  It was a difficult decision to make alone.  I convinced myself that in 30-40 years, if John had the mutated huntingtin gene and the children inherited it, there would be a cure or therapy for symptoms, so I chose to have our children, Keith and Vanessa.

Wow, was I wrong.  30-40 years sounds like a long time, but when it comes to the brain, it is not.  The brain is certainly the least understood organ in the human body.                                 

As I have blogged many times, there is HOPE, with 50+ companies and 50+ pipeline drugs in Huntington’s Disease pipeline landscape.

We Can Never Lose HOPE…..  

I’m a Huntington’s disease (HD) advocate, President of the HDSA San Francisco Bay Area Chapter, a blogger and an author.  Visit my website  https://theresecrutchermarin.com

 

 

 

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