HD Awareness

Hero’s/Advocates In the Huntington’s Disease Community

There are many Huntington’s disease hero’s/advocates among us, some celebrities, some like myself, every day folks living their lives as fully as possible.  The pictures I shared on my blog are some of these hero’s/advocates: Musician Kate Miner, Woody & Marjorie Guthrie, Pitcher Joe Smith, Journalist Charles Sabine, Scientist Nancy Wexler,  Hockey player Jake Dowell, Movie producer Chris Furbee, Dr. Ed Wild, Dr. Jeff Carroll, Coach Mark Helfrich, Health & Fitness Guru Shana Verstegen, Blogger Dawn Quyle Landau and Drummer Trey Grey. (I’m sure there are others that belong on the list)

First and foremost, my sisters-in-law, Lora, Marcia and Cindy are my hero’s; caring for them was a privilege and an honor to walk beside them as they struggled with HD. 

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.  http://www.hdsa.org  

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

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