I’m a Huntington’s disease (HD) advocate having lost my three (3) sisters-in-law to this horrific, genetic brain disorder with NO CURE. I published a nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s to heighten awareness, to honor my sisters-in-law and to generate dollars to be donated to the nonprofit, Huntington’s Disease Society of American (HDSA).
“Since Lora had gone into rehab, my demons had started appearing at night. With my hormones fluctuating and the lack of sleep, my resistance had been faltering ever since Keith’s birth. Now I took a deep breath, but my throat constricted and my chest tightened. How I wished I could not worry about HD until something happened, if it ever happened. Hoping to push my terror away, I crossed my arms and squeezed my body as tightly as I could. My eyes went to my sleeping angel, and I prayed. “Dear God, protect this innocent child, who deserves nothing less than all the joy in the world. I pray I have not condemned him to a life with Huntington’s. Please help me be strong.”Struggling to hold back tears, I stood at the crib and made a solemn promise to Keith. ‘I brought you into this world, my darling child, I will always be there for you, no matter what.’”
We Can Never Lose HOPE……..
Purchase the book/kindle: amazon.com/Watching-Their-Dance
and many other book websites.
My Author Website: https://theresecrutchermarin.com/purchase-book/
100% of the cost of the book is donated to the nonprofit, Huntington’s Disease Society of America (HDSA). http://hdsa.org